I got a Disability lawyer who handles Fibromyalgia cases and the National Fibromyalgia Association had on their site that fibro is a debilitating condition. We have to make sure and journal our symptoms daily or at least one week before we see these doctors and tell them how long our flares last, what is hurting, how long, what helps, what doesn't, and tell them things like If i had to work, I would be fired because I'm in pain all day long and can't lift more than 20 pounds, my muscles spasm with no relief even with meds. We have to make sure that our doctors are documenting every symptom when we come in. My primary care physician types his reports and signs them. He reads all of my chart EVERY time I come in. I want to pull all my medical records to see what is in there. I'm actually thinking about filing for disability. It would really help me get the care I need badly. I know it's a loooonnnnnggg fight but I may go that route soon. I'm going to ask Monday how much it would cost to get a copy of my medical records. I'll ask my Rheumy in April when I go back to him.
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