Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

3,861 Members

48,134 Posts

0 Online

deleted_user 12/05/2007

Hi, hope everyone's evening is going well....I am fairly new to all of this and I have questions but first I'll tell you all what has happend in 1 (ONE) year, Dec 29th,06 working residential construction with my brother to suppliment my income (self employeed dog groomer 14 years, slower in the winter months). We had a fender bender, no big deal, SO I THOUGHT. Worked all day felt fine, got a little soar that evening,,,,,got worse,,,,,and worse,,,,,felt like a train wreck by Sunday, New Years Eve %@&^$&%, felt like total crap!!!!,,,,,and I've been hurting everyday since. Whiplash,,,chiropractor, physical therapy, cortizone shots in my neck, massage therapy, steriods, vicodine, flexirl, xanax, anti-depressants, pain all over, fatigue and finially Lyrica!!! Neuroligist ordered blood test, tesed possitive for connective tissue disease (whatever that is)...
My question is....how many with fibromyalgia are on dissability? Thanks, Laceyblue

Micki55555 12/05/2007

I have been on disability for fibromyalgia since 1996.
If you are now not working and are planning to apply for SSDI you should do so as soon as possible because the longer you wait, the more quarters worked drop off your record .

deleted_user 12/05/2007

Micki, I don't know much about SSDI, what do you mean by quarters worked dropped? I thought somewhere I read that you needed to be off at least a year before applying? I need help to understand this topic.

deleted_user 12/05/2007

I have been on disibility for fibro for about 2 years. I had to do the court thing cause I was initioally denied. I just kept on pushing as i knew there was no way I could hold any type of job anymore. Yes, do it immediately as it takes forever!!

deleted_user 12/05/2007

Im waiting for my hearing its been 2 yrs so hurry and apply

Bluesydeb 12/05/2007

Hi, Laceyblue. Welcome to DS.

I got short term disability and long term disability through my employer for a limited time. They (UNUM) said my "condition" was primarily comprised of "self reported symptoms" and would not cover me for more than two years - a convenient clause in their contract in my humble opinion. I went from full time to part time because of fibro - and I think I will eventually be forced to apply for SSDI - but I want to keep working as long as I can...

deleted_user 12/05/2007

You need to apply ASAP. It takes an avarage of 2 yrs to get SSDI if not longer. It took me over four years of fighting and I had a lawyer. It's differs from state to state, but it still can take a long time and another thing was that your doctors need to really be in your corner as to if you can still work or not and have good documentation of all your medical records and tests. I wish you luck...it's not easy.

deleted_user 12/05/2007

i have filled not recieveing yet .. but somany people have trouble gettin it for fibro so i filled under other things...

deleted_user 12/05/2007

I am on SSDI for fibromyalgia. I was very lucky in getting mine in 6 months, it generally takes much longer. Fibro was not, at one time, an 'accepted' diagnoses on the SSD list, but is now. You do not have to wait to apply, apply immediately. SSDI is a federally funded program, and my understanding is that the rules are the same no matter where you live.

deleted_user 12/05/2007

I have Fibro, herniated disks and arthritis but I'm still working, right now anyway. i aslo suffer from depression and anxiety. Should I be applying for diability now even thou I'm still working? I'm worried because it seems to take so long to get.

deleted_user 12/05/2007

I'VE HEARD OF MORE PEOPLE BEING REJECTED FOR FIBRO AND HAVING TO HIRE A LAWYER ON THIS SITE. OF COURSE I DON'T TALK TO MY FRIENDS ABOUT IT. I GOT MINE FOR PTSD AND THE FIBRO CAME LATER. I'M SO THANKFUL THAT I GOT IT WAY BACK WHEN. I THINK THEY MESS YOU OVER TOO MUCH WITH FIBRO. BUT LIKE THE OTHERS HAVE SAID, YOU NEED TO START ONN IT ASAP. YOU CAN DO IT ALL ONLINE IF YOU WANT. THERE IS A GOOD SITE TO GO TO FOR HELP.
http://www.thedisabilitydigest.com/Members.htm
IT IS A GOOD SITE....LOVE...HELEN

deleted_user 12/05/2007

I THINK IT VARIES FROM STATE TO STATE AS I FOUND OUT TODAY, IN CALIF, YOU CAN GET IT SHORT TERM, LIKE IF YOU HAVE TO GO THRU A 6 MONTH TX. LOG ONTO YOUR STATE AND DO THE HOMEWORK JUST B/C YOUR STATE MAY BE DIFFERENT FROM MINE....LOVE...HELEN

deleted_user 12/05/2007

I think, Helen, you are referring to state disability. My understanding is that in order to qualify for SSDI, the condition has to be expected to last 12 months or more, it does not pay short-term benefits, and it is supposed to be the same everywhere for SSDI, state programs do vary, of course.

deleted_user 12/05/2007

I bumpted up an older thread on this same subject, there might be some additional effort on it, I didn't re-read it, but it's on page one now under the heading HELP TOPIC

deleted_user 12/06/2007

I applied almost 2 years ago and am still waiting, I was denied 3x's and now have an attoreney and am waiting for a hearing. In oregon you have to be disabled or there has to be proof that you will be disabled for 12 consecutive months. I have heard that just using fibro makes it diff to get disability and most people include all medical issues like depression, or anxiety, atleast in my state your more likely ot get disability for mental issues then for fibro,it's not right but that's how it goes

deleted_user 12/06/2007

I have been on disability sense 2000. It takes awhile, but they do give you back pay starting from the first time you file.

Join the Conversation

Posts You May Be Interested In

come unwind in the bp lounge

Posted by: irishwriter

Last Reply: kisses2016 12/15/2020

7992

theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
Walk a Day

Posted by: Rizen

Last Reply: Secouya 03/01/2021

2629

I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...

come unwind in the bp lounge

Walk a Day