I have had severe joint pain, muscle pain, fever, fatigue...and oh my did i mention pain. I have seen my PCP, several neurologists, rheumatologists, hematologists, spinal specialists, infectious disease specialists, febrile specialists and the list goes on and on for 5 years. I have gone hundreds of miles for appointments, even out of state. I have been poked, proded, biopsed, scanned, scarred and left motionless from so many procedures I cannot tell you to come up with the latest diagnosis this year of FM. Although my understanding and research is not as extensive as most of you that have been living with this a long time, it seems that FM is more a group of conditions that will either disappear of result in more symptoms or a new condition. My problem is I feel I am dishing out money hand over fist and taking pill after pill for doctors to treat my symptoms rather than to fix the problems. I dont want to be on pain medication and muscle relaxers everyday for the rest of my life. And my doctors, who see me for all of 20 mins in the normal course of the day do not see or experience the pain and fatigue that occurs from the time I wake up to...well let's say 24 hours in different waves. How do you find a doctor who will listen to the symptoms that you have and take you seriously on the extreme of the situation. I have had everything from PCP's nurse saying if you don't take an antidepressent for this pain all I can suggest is a psychiatrist. To my neuro saying that I have read too much about too many things and that his wife read a medical journal and thinks she has 244 diseases and I should not worry about my symptoms. My hematologist sympathizes with the issues as he has been the one guiding most of my care; it gets so frustrating that more and more things have manifested over this 5 year time frame and I am afraid I will continue to deteriorate before I find any answers. A PILL IS NOT THE ANSWER. I want a reason for all of these symptoms I have. Diaries and history of tests to show increases and decreases do not seem to be grabbing any attention and I agree 5 years is a lot of data to go through but they are doctors not God and they should help to guide the care, not to dismiss it in hopes of something coming along to have the lightbulb moment. I will share more if asked, but think I have rambled and frustrated myself enough for one evening. Thanks for listening. Any coping skills would be much appreciated.
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