Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

3,848 Members
48,098 Posts
0 Online
Muscles & Bones
/ Fibromyalgia Support Group

Heightened or Hyper Sensitive Senses

deleted_user
deleted_user
Not sure if this is related to my Fibro. Anxiety, Vertigo or all the above, so I'm going to post it in a few locations.
Just wondering if any of you experience this sort of HyPER-Ultra sensitive state, with your senses. What I mean it that certain noises literally make your body jump or "twitch". Some days I'm sensitive to noises, (certain frequencies seem worse) , lights & motion. And some days its nearly intolerable--feels like I'm going to go crazy from all the "jolting" to my system. Just wonder if any of you have had this & found anything to help...

Many Thanks!
deleted_user
deleted_user
i have it with lights - especially at night with the bright car lights
deleted_user
deleted_user
It sure is part of fibro. I haven't been to a movie at a theater in years. Too loud, too bright, too many people in a strange environment.

Well, that . . . plus I'm cheap! *grin*
deleted_user
deleted_user
Hypersenstaive..yes..to Noise...light...emotions...my emotions have become way over reactive over the past 2 years...i have never been a calm person anyhow...but have never been this uptight or so easily pissed off either...

I absolutely CANNOT go to like 4th of July fireworks shows because If I hear unexpected KABOOMS...it is like an electric jolt in my neck quite painful...
deleted_user
deleted_user
noise. Can't stand it. Never used to be like this, could always tolerate a din. Light too, and some smells. Don't know how to deal with it. Just have to learn to cope
deleted_user
deleted_user
Oh yes Lis, I can relate. Background noise is intolerable these days. Unfourntely my hubby is a Fire Chief, so the radios are on 24/7. The squelching sends me into orbit.
If I'm on the phone, TV and anyone talking in background makes it impossible to hear.
Lights, sounds & motions also jolt me.
I use to love to go to fairs and ride the rides. Have you noticed how you can not do that anymore? My head spins to the point of intense naseau and vertigo.
I'm with ya girl and it all sucks. Mel
deleted_user
deleted_user
yep have this problem ,light sound skin sensitivity to touch, and smell...people think i am crazy on that one cause they can't smell anything but i sure do...i dont like brightlights...guess i am a vampire, sounds bother me and i can hear sirens way before anyone else does, they find that amazing...also skin sensitivity drives me nuts, also have had this vertigo for a few months now and it is awful.....it gets really bad...hope you feel better soon...and yes i whispered this to ya so it wasn't too loud..lol
deleted_user
deleted_user
How could I have forgotten smells???

I have to buy everything unscented. If I have to be by someone with cologne or perfume on, I will get a horrendous headache.
deleted_user
deleted_user
somethin i found useful today was this cool aloe vera type face pack you put in the fridge. When i came home from work i put it on over my eyes and it sent me to sleep
deleted_user
deleted_user
i get it really badly with skin too - i cant bear clothes on my skin particularly my thighs
deleted_user
deleted_user
where di ya get the face pack ???
deleted_user
deleted_user
im in the uk but i got it at a shop called Sally's which sells beauty products but they must do something similar online.
deleted_user
deleted_user
i thought that i was going crazy i didnt think these were part ofit. i often find myself wish it away.
thanks for sharing .
deleted_user
deleted_user
I am like that w/ light and smell. I think I am half deaf, living in Brooklyn all my life has probably contributed to that.
deleted_user
deleted_user
YOU guys are the best--THANKS for all the replies! It makes me feel so much better that i'm not alone. Sorry that there are so many others suffering from this too--I always say to my husband I could be a billionaire-if I could find the magic cure for us all.
((hugs)) & thanks again for the replies.
deleted_user
deleted_user
Yes, yes, and yes. The sense that is affected changes, and I am not always bothered by it. Noise is the worst, and certain frequencies for me as well. I alway need to mute the TV during commercials because they are louder than the program. It can be any noise though, not only TV. From dogs barking, to dishes clinking to people talking....
Light, smells, and touch are also very irritating from time to time.

You describe it very well as a jolting sensation. Other people don't understand how awful it is, but I can relate to you.
Posts You May Be Interested In
  • irishwriter

    come unwind in the bp lounge

    Posted by: irishwriter
    Last Reply: kisses2016
    7992
    theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
  • Rizen

    Walk a Day

    Posted by: Rizen
    Last Reply: Secouya
    2579
    I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...