
Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
For me, I get as much pain relief as possible from the meds and actually, there's a certain amount of acceptance of the "new" me that I've gone through. Not that I'm not always looking for answers, but I accept that I may have to live this way for quite some time.
If you're not getting pain relief to any extent, then you should be. Work with your doctors, pain clinic and try to do some sort of "movement" every day.
I know it sucks....try to hang in there and vent as much as needed!
love and hugs,
morus
But I will add this Ally, I feel better than I did ten years ago. That may not mean the pain is alot less, but I have learned to love myself in spite of it and in spite of my limitations.
I think your first priority should be finding the best possible pain and fatigue relief there is...then, work on the movement stuff.....
Please guys.....help me out here.... : )
Morus
Hang in and God Bless!
i am hoping that the lord will do the same for you may god bless you in jesus name amen
love trish
not really...
but
this has "Helped"
acceptance
massage therapy every other week
hot baths every night
stretching a deep breathing twice a day...
Vit D supplements
learning it is quite OK to say.."Sorry,have a date with my couch"
I do still feel achey
I do still Flare
but my Flares are No where Near as aften
and they last No where near as Long...
Bonnie
Don't lose hope. I am ALOT better than I was 10-12 years ago. I think for me it was getting the proper balance of medications. I have a pretty good life now, and have made some major changes (going back to school, getting into the medical field) in my life that I would not have dreamed possible 10 years ago. I'm never without pain, but it is managed. I work as a medical assistant at a cancer center now. And, even though fibro is a different disease, the lessons I have learned from fibro go with me every day. Pain is pain, disease is disease no matter what it is, and treating people with compassion and respect is what we all deserve.
For me, it seemed to be a matter of getting the perfect combo of medications. The antidepressant seems to touch something in my chemical balance which gets me functional. If I don't have the right dosage, I would hardly be able to get out of bed in the morning. That with the muscle relaxer, advil/tylenol and a host of vitamins/minerals and herbs keep me going.
Blessings,
Jan
I have pain still but nothing like it used to be. I had to accept my fibro before I could really start trying different things and some of the naturopathic things have almost eliminated my pain. I'm not cured but I am not that same miserable person I used to be.
I get out of the house and try to keep moving as much as possible.
My faith helps me too.
So don't despair and keep trying new treatments until you start to feel better.
Hugs, Keleee :)
My pain was only on one side and my MD tells me that the toxins stayed on my right side where the biopsy was. The pain is now gone and my brain is coming back. I hope it continues.
I take meds like a lot of others do, and they do help a lot, but I am better in the summer and better with a good diet and a little bit of exercise - the exercise makes things worse for a little while and then I really notice the difference. There are lots of ways to help feel better (you notice I said feel better instead of get better). I know I generally moan a lot about my pain and stuff but I am working full time and running a household, so I really think I am doing okay. I wouldn't have dreamed of being able to do that a few years ago. Don't give up, you can always message me if you like :)
Ness
I also find that losing weight has helped some too. Before Lyrica, I did not exercise daily, now I do and I think that is helping also.
Lyrica has been the only drug that has given me any consistent relief from pain. All the anti-depress drugs did not work. I'm very thankful for Lyrica.