Ally....I'm soooo sorry.....hang in there. Listen, I've had it for 10 + years and I know the feeling. I wish I had an answer. I'll pray for you.

For me, I get as much pain relief as possible from the meds and actually, there's a certain amount of acceptance of the "new" me that I've gone through. Not that I'm not always looking for answers, but I accept that I may have to live this way for quite some time.

If you're not getting pain relief to any extent, then you should be. Work with your doctors, pain clinic and try to do some sort of "movement" every day.

I know it sucks....try to hang in there and vent as much as needed!

love and hugs,

morus

I'm bumping this up for more and better advice/hope.
But I will add this Ally, I feel better than I did ten years ago. That may not mean the pain is alot less, but I have learned to love myself in spite of it and in spite of my limitations.

I think your first priority should be finding the best possible pain and fatigue relief there is...then, work on the movement stuff.....

Please guys.....help me out here.... : )

Morus

Alley, I have bad news and good news... It doesn't go away. I have dealt with it for 35 years. My (good) years. I grieve my before life. But in the end you just try to adjust to your new way of living, and thry to smile along the way. FInd a good pain management Dr. But even that hasn't taken the pain away for me.

Hang in and God Bless!

With me it has been a bad 8 months but have had for 20 plus years and there are some times when it is more bearable.Good pain management is good and if you can find a way to get that good rem sleep they talk about it helps too. Are you doing some mild stretching exercises and a bit of walking or swimming. Helps some i think marilyn

i haven't gotten cured but i have found drs that believe me and are helping me with meds. i take 40 mgs of methadone a day and 3 vicodins a day for breakthrough a day and it does help me to be able have a better quality of life.
i am hoping that the lord will do the same for you may god bless you in jesus name amen
love trish

I'VE ONLY HAD IT SINCE JULY, GOT MINE FROM A HEP C TX AND WAS TOLD TO NOT EXPECT IT TO GET BETTER ONLY WORSE AND IT WILL NEEVER GO AWAY, I ASK FOR THE TRUTH AND AM GLAD I GOT IT. I WANT TO KNOW WHAT TO EXPECT...HELEN

Better ??
not really...
but
this has "Helped"

acceptance
massage therapy every other week
hot baths every night
stretching a deep breathing twice a day...
Vit D supplements
learning it is quite OK to say.."Sorry,have a date with my couch"

I do still feel achey
I do still Flare
but my Flares are No where Near as aften
and they last No where near as Long...

Bonnie

Hi AllyCat:

Don't lose hope. I am ALOT better than I was 10-12 years ago. I think for me it was getting the proper balance of medications. I have a pretty good life now, and have made some major changes (going back to school, getting into the medical field) in my life that I would not have dreamed possible 10 years ago. I'm never without pain, but it is managed. I work as a medical assistant at a cancer center now. And, even though fibro is a different disease, the lessons I have learned from fibro go with me every day. Pain is pain, disease is disease no matter what it is, and treating people with compassion and respect is what we all deserve.

For me, it seemed to be a matter of getting the perfect combo of medications. The antidepressant seems to touch something in my chemical balance which gets me functional. If I don't have the right dosage, I would hardly be able to get out of bed in the morning. That with the muscle relaxer, advil/tylenol and a host of vitamins/minerals and herbs keep me going.

Blessings,
Jan

Ally, I am much better then I was in 2002. It was the right combo of meds and also addressing my depression and changing to a stronger antidepressant.

I have pain still but nothing like it used to be. I had to accept my fibro before I could really start trying different things and some of the naturopathic things have almost eliminated my pain. I'm not cured but I am not that same miserable person I used to be.

I get out of the house and try to keep moving as much as possible.

My faith helps me too.

So don't despair and keep trying new treatments until you start to feel better.

Hugs, Keleee :)

People get better?!?!

Yes AllyCat40 I have gotten better. After becoming sick after a biopsy I knew something was wrong and I did not give up. Long story short many people have biotoxin diseases and don't know it. It is kept from the public and most doctors don't know anything about it but you can learn about it if you so choose. My biotoxin disease is from mold in my breast. I developed white spots of signal abnormality on my brain, fatty liver and Secondary Adrenal Insufficiency. The toxins are dead but they cause more damage than the live infection and Lyme disease is the worst of all of them. It is hard to get a diagnosis for Lyme disease because it is very expensive to treat but I will bet half the people who have FM have Lyme disease but can't get a diagnosis. If you are interested in this go to www.chronicneurotoxins.com and in addition read up on the politics of Lyme. I have posted a good article just recently. The politics of mold are the same as many people get sick at work or from renting in water damaged buildings.

My pain was only on one side and my MD tells me that the toxins stayed on my right side where the biopsy was. The pain is now gone and my brain is coming back. I hope it continues.

Hang on in there Allycat, once you find the combo of meds and therapies that works best for you, it will get easier to manage the DD, you got a lot of good advice here. Don't dispair Ally, we are here and you can lean on us till you can manage. We all do it Poppet, tis no shame in that. One day at a time Allycat, one day at a time. Warm thoughts and hugs, Owlxx

I agree with zzowl Ally, once you find the right combination of what works for you then you will find some relief. It definately doesn't go away but I feel better than I did a few years ago. I often think "Has the pain lessened or am I just dealing with it better?" and I think I am dealing with it better - cause I really know when I am not dealing properly lol. I went to a Pain Management clinic which helped me more than I can express. It had nothing to do with meds etc. but everything to do with learning how to pace myself, work within my own limits, combat depression, learn to relax and enjoy life again. This new frame of mind changed my FM life.

I take meds like a lot of others do, and they do help a lot, but I am better in the summer and better with a good diet and a little bit of exercise - the exercise makes things worse for a little while and then I really notice the difference. There are lots of ways to help feel better (you notice I said feel better instead of get better). I know I generally moan a lot about my pain and stuff but I am working full time and running a household, so I really think I am doing okay. I wouldn't have dreamed of being able to do that a few years ago. Don't give up, you can always message me if you like :)
Ness

Lyrica has really helped me. I no longer feel the general daily ache of my fibro. I've been on it for about 3 months now after finding a wonderful doctor who treats fibro patients.

I also find that losing weight has helped some too. Before Lyrica, I did not exercise daily, now I do and I think that is helping also.

Lyrica has been the only drug that has given me any consistent relief from pain. All the anti-depress drugs did not work. I'm very thankful for Lyrica.

I can not say that I have gotten any better, but I have in a way, because as time has gone by, I have learned to manage it better.