I'm glad you found the solution to your FM symptoms. My rheumy thinks my sleep disorder is the root of my problems. I am sleeping better, but I still have the same symptoms as before when I was awake very late and had shallow sleep.

I will ask him about this drug the next time I'm in his office.

Though everyone is different and have different symptoms and various reactions to each, it's certain something to think about, research and consider.

Thank you for the information.

YOU DON'T HAVE ANY SYMPTONS OF FIBRO?

CAN YOU GIVE US A SITE TO LOOK UP, TO HELP START OS OFF....?

Is it possible that you really didn't have fibro? There is more to fibro than the sleep problems.. I take plenty of sleeping meds and still have the pain and the fog, etc..

Yep, I have to agree with Allie. I get enough sleep, but still have the pain. I can talk to the doc, but I don't know.

I sleep up to 12 and more hours a day at times ...Thatts not helpes at all with Pain,muscal soreness or anthing else

I sleep 12 hours more or less and fm is still there when I wake!!!! no biggy

What? There is a cure??

Okay, I'm happy for your, but I'm offended by your attitude. What works for one, does not always work for another. What helps one can make another sicker. If you had been around these parts and read our stories, you would get that.

I agree that there is a sleep disorder aspect to this disease. I'm happy your cured. I'll check into the medication. But don't come on this board making a blanket claim about this crappy disease being cured.

Jan

i just went to the dr yest. she now believes that my leg pain and morning stiffness is fibro. after all these years. she said that i need to get sleep and exercise. i only sleep 4-5 hours a night. and that is with taking trazadone. she didnt put me on anything else.im taking lyrica and it helps a little. so i am going to give the excercise thing a shot. she told me to either start PT or a gym that has personal trainers that work with fibro patients. i will call my insurance company bc some of them pay so much a year to join a gym. i am willing to do anything at this point. of course i will need to push myself to do it.
elaine

I was on Xyrem for quite a while. It helped a lot with the narcolepsy/insomnia (a really annoying combination), and did ease up on the fibro some, but it never cured my fibro. I ended up having to go off of it when I started the Duragesic patch though 'cause being on both at the same time was too riskey.

I'm glad it works for you though. I hope it keeps up.

wow Glad it works for you. Will write that down. marilyn

I am glad this worked for you. I, too, wonder if you were truly afflicted with Fibro. Although, I do agree that stage 4 sleep does help bunches. Even though many of us get sleep, we do not get into what is called REM or state 4 sleep. That is truly the restorative sleep we need. And, there is research that says our tendons and muscles to not ever have a chance to recover, thus the pain, because we never get into stage 4 sleep. Again, I am so glad this worked for you. It may or may not work for everyone, but is certainly worth a try for those who are struggling. As all of you know, we will try most anything that we haven't tried before. Personally, I take a Vit. D supplement (my levels were found to be low) and an all natural supplement that have really helped me. I, too, have taken sleep meds, gotten to stage 4 sleep, but still had Fibro problems. So, it is different for each of us. Again, I am so glad it worked for you. Prayers and hugs.

Usannie, Congratulations. I am so happy for you.

I am so glad uve found something that helps u sleep and that u no longer have fibro pain.
I have to say that I now take seroquil and sleep better than i have in years. However im still in pain, just like i was before starting the seroquil. The only change in me is that i am sleeping like a rock, all my fibro pain is still here every day 24-7 even with getting a great nights sleep.

I am very happy for you that you have been "Cured"...This disease has taken so very much from me...and getting decent sleep...light excersises has Helped ...some...but it by NO means has taken away this disease...just finding these places on the internet has helped more actually....cause I used to be made to feel as tho I were crazy or lazy....am neither...