Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
i have never been officially diagnosed with fibro, but as i have said in the past, the dostors i have been to all agree that my symptoms match those of a person with fibro. however i have recently been really sick, falling over, getting dizzy all the time, my knees (especially the right one) hurt so badly that doubling my pain medication doesn't even help. i have been tested for numerous diseases. thyroid disease, lupus, lyme, hepititis a b and c, hiv, rumatoid arthritis, cerebal palsey, you name it. all the diseases that could closely match my symptoms except for MS. now i am scared that i could possibly be suffereing from MS this whole time and i am wondering how would i know for sure? what testing should i get? is there a major difference between MS and fibro? who should i ask for help? what are the main signs that would tell me if it was ms and not fibro? i know a lot of you said that you were dizzy a lot too, but then you were tested for MS. i have never felt this bad before. usually i take methadone for the pain and it works great. i even have managed to keep it down to a minimal amount after taking it for 9 months. only recently have i had to go so far as to take twice my normal dose(i have built up to that dose over the last month) do flares usually last this long? i was getting so much better and then BOOM! out of nowhere i started going downhill fast. my doc gave me roxycodone for breakthrough pain, 5mg. i have to takle three at a time and even then they don;t seem to help much. he is hesitant to give me anything stronger for breakthrough pain, but i can't keep going up on my methadone because i will run out every month before my next visit. i refuse to take all the anti depressants he tries to give me and he never really tries to engage in conversation about whats going on. he just gives me the same script and sends me on my way, collecting his $115 for ten minutes of his time. i know others who go to him who have half the pain i do and he gives them whatever they want! ahhh! maybe i look too young and innocent or something? i don't know! and my boyfriend is in california right now telling me to take hot baths! i want him here now!i am scared! i haven't been this scared since i first started to get sick and had no idea what was wrong with me. then i found fibro on a website and it seemed like the perfect answer to my questions. now i am not so sure. do alot of people with ms think thay have fibro at first? i am losing it!
-
I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
-
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
I was on methadone for a couple years - it worked pretty well, then it seemed to lose its effectiveness. The doctor doubled the dose and I was so lethargic and it wasn't helping - I'm wondering if that is what is happening to you? Maybe you could ask your doctor if you could switch to something else for a while? I went back to vicodin - its working better than the Methadone did towards the end. Good luck!
You have to have the Dr up your dose keeping you on the same amount will not do anything..Im on MS CONtin with OXY for breakthru pain when I started on mS Contin I was only on 15mg twice a day as months have gone by the Dr has increased it little by little Now Im on 60mg 3times a day You see what I mean it has to be increased it losses its effectiveness as time goes by..As far as MS goes they usausally do a spinal tap to see if you have it.Its one of the most effective ways to tell.You need to see a rheumy and get a proper fibro diaganoses The symptoms of fibro and MS can be simalar!!! I hope this helps Hugs to you!!!!!
If you go to a good neurologist he should be able to give you a more definitive diagnosis..there are MANY MS symptoms however that do not go with fibro .
Fibro pain is different than MS pain.. Vertigo and dizziness are not generally present in fibro( though you can have both but not related)
Eye pain in MS is the result of inflammation of the optic nerve..
Intention tremorin MS is not a symptom of fibro..
Many of the symptoms seem similar but actually are very different..
Hugs, Micki
www.http://www.fibrowelcomepackage.com
You want to know the difference so here goes. The difference, is fibro won't kill you. It's just very painful. MS, if not caught early, treated, or monitored, can end your life prematurely. Notice I said, if not caught or treated. So, that's why it's important to be sure. Part of me wants to have the spinal to be sure, but I just don't want more pain in my life. I'd do it if they'd knock me out for it.
I don't know if you're symptoms are MS or fibro related. I do know alot of people who have fibro, later are dx'd with MS. I spoke with the MS community, and they're a good place to get some info. They're very nice and informative.
Some of the things I had that concerned my doc were I am going to the bathroom more often, more urge. I wet myself and the bed a couple of times. My eyes get blurry some days, one or both and it lasts for a day or two. I have pain in my arms that feels like someone ripping the skin off of my arms. Nerve pain. She said that it didn't sound like fibro pain. Those are just the symptoms I remember. Maybe I have it, maybe I don't. I figure if I do, I'll know in a few years tops. Maybe she'll push for the spinal, I don't know.
But I truly hope it's not MS. As bad as fibro is, you don't want it. Even tho it can be treatable, it's still not good. I'm sorry if this sounded harsh, but I really was just trying to answer your questions. I know where you are, and it's nerve wracking! Hang in hon!
Incidentally my brother-in-law almost died a couple of years ago and was in the hospital on a ventilator inches from death. The CDC got involved and the last thing they did was a biopsy of his lungs. They never did find out what made him so sick but it came out that the training building where he worked was infested with mold. The CDC and all the specialists called in never checked for mold exposure. Why? Because mold exposure is a political and economic disease that insurance companies will have to pay for. Therefore it is not a diagnosis they even consider. Doctors are not even taught this in medical school. But mold has been around for millions of years.
I asked my anesthesiologist friend who was also the anesthesiologist for my brother-in-law if they considered mold, he said, no they didnt. So I ask him when you look at womens implants when they are being replaced or removed are they ever black or brown with mold. He said he saw this but didnt know what it was. I asked him have you ever opened someone up and seen mold? He said he had seen some people whose insides are brown. So I ask do they ever suspect a fungus infection. He said yes. So I ask did you know that fungi release mycotoxins. Mycotoxins are neurotoxins. He knew this. In defense of my friend this is not his area at all and I had a lot of leverage because his family and my family are all good friends but come on why they are not looking for these things.
IT COMPARES DISEASE/ILLNESS SYMPTOMS SO YOU CAN TELL WHICH IS WHAT MS OR FM OR WHATEVER SO TRY THIS SITE PLEEEEEEEEEASE THANKS AS LOTS OF INFO., THERE!!!!!!!