Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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deleted_user 02/01/2009

We've all seen the chart marking the 18 tender points....but I seem to have a few extra.

Down the outside of upper leg, between hip and knee.
On outside of arm, about midway between elbow and shoulder.
On top of arm, just below elbow.

Anyone else have more, and where?

Thanks all, and HUGS

deleted_user 02/02/2009

Oh yea...I bet at least 60 percent now of my body...IF you Touch Feels like a Knuckle Punch, and I am NOT Overstating...

from the base of my skull, down the backs of Both arms...my rib cage about where ur elbow touches the rib...the 2 Fat pads on either hip...down the sides of both legs to about 1/2 way to the knees...and Inner fat pad just above knees...acyually, I cannot Sit with my legs bent outward...I get this White Hot Pain, feels like a Lump of Coal sitting right in the fat pads inner knee...

the fron Top of Both thighs...both ankles...oh oh oh...Collar bone area...like between my breats and collar bone...

Mostly they do not hurt Unless I am touched...sometimes one or another will hurt all on their own...

deleted_user 02/02/2009

For a few days, my left shoulder blade was inflammed along the top & on the outline of the whole shoulder blade. I know that's more that the named tender points.

I tried doing massage & breaking them up with a Thera-Cane I got from physical therapy. OhMyGosh....made it hurt 10 times worse. I'm glad I have Lidocaine patches to use on specific inflammed & flaring areas.

PeaceN2You 02/02/2009

I have two that are not on the chart as well. If you reach back under your arm to a couple of inches past where your bra cup stops (men are just going to have to figure this one out LOL), just where you kind of "turn the corner" from your side to your back, there is a tender point under each arm. It's about 5 to 6 inches below your armpit, and I don't know about anyone else, but when I found that one, it just about sent me through the roof. I have some nasty ones, but these are super nasty!

moonwater 02/02/2009

I kind of wonder how they came up with those specific tender points to begin with because there are a lot of times that just about any point on the fibro body that can be "tender" and sore, and then to touch it is way ouchie.

deleted_user 02/02/2009

Ihave them on my head as well. and well...pretty much all over!!!

deleted_user 02/02/2009

oh yea.......2...in the back of my head...about 3 inches above the base of my skull...about the spread between your thumb and pointer finger apart....

deleted_user 02/02/2009

It may be a shorter list if we pointed out where we DON'T hurt.....

deleted_user 02/02/2009

smj.. I have those same extra points that you do.. it's terrible, especially if I accidentally run into a door with my arm. Lori

deleted_user 02/02/2009

Okee Dokee, I am not alone here!! I seem to find new ones daily...

Mine are usually pretty quiet, except the left shoulder (me too, Jane)....I tried to explain to hubby how much they hurt to touch. Mine feel like a REALLY BAD bruise when you add just the slightest pressure...same for you all?

HUGS to all

PS...Peace, I found the spot you described......OUCH!!!

CarrieinSK 02/02/2009

I told my doc that I hurt in way more than the 18 points and asked him if there were more than 18 points...he laughed and said "of course there is, there's hundreds".

I bumped a the FM and Ankylosing points charts for you to compare.

deleted_user 02/02/2009

Thanks so much Carrie....guess I missed that the first time around!!

HUGS

deleted_user 02/02/2009

I have 2 extra on the bottom of my feet.

deleted_user 02/02/2009

on each side of my (outer) feet, behind the arm just above the elbow, just above the kneecap(where the fat is), and quite a few on my head, at the base of my spine both ends. and there is a few that the Dr. didn't check.

deleted_user 02/02/2009

I have all 18 plus the one that peace mentioned on both sides. I also have one under my left arm about 1/2 way down my rib cage. One in my right hand between my thumb and forefinger. I have several in my inner chest wall between my breasts as well

deleted_user 02/02/2009

OH YEAH I HAVE OTHERS, I HAVE ONE ON TOP OF BOTH FEET,NOT SURE IF THATS ONE OUT IF THE 18, AND THEN I HAVE THE ONE INBTWEEN MY SHOULDER AND ELBOW LIKE YOU HAVE AND ALSO THE KNEE ONE ON THE OUTSIDE'WE'RE LIKE PIN CUSHIONS, JUST STICK US ANYWHERE AND IT HURTS. lol

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