Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
you're in the middle of a conversation with others, and someone always manages to make a quick, snappy reply that's funny? I sit there listening, and then 2 days later I wind up thinking 'you know, I should've said..."
You go blank on something that you've known for years, things that have always just rolled off your tongue without a second thought. Your phone number or birthday for instance. I can never remember how old I am anymore....of course that may be a good thing. LOL
Your family thinks that you're anti-social & you miss way too many get togethers...they think you're either really depressed & need to get out & see people more, or they think you just don't like being around them. It never crosses their mind that you stay home, on the couch with an ice pack or heating pad, pain pills, and the only thing keeping you from crying is the knowledge that crying will only make the pain worse. (I suffer from this one way too often; I have so much pressure & anxiety over family, and family *should* be the ones to understand the most.)
You buy a book or movie at the store, and come home only to find out that you already have that one AND you've already read it! :)
Conflict or stress of any kind keeps hitting you. It only makes your IBS flare, your anxiety to skyrocket, and increases the urge to isolate yourself from the world. This happens online & real life. I hate fighting & bickering on support groups. (NOT aimed at anyone here!)
Ok, there's alot more, but it's late & I'll stop now. Feel free to add to the list. Funny or serious, it feels good to get it out. You've gotta be able to laugh at yourself sometimes. I asked my husband 3 times today whether or not I took my medicine at dinner or not. He just laughs. :)
You go blank on something that you've known for years, things that have always just rolled off your tongue without a second thought. Your phone number or birthday for instance. I can never remember how old I am anymore....of course that may be a good thing. LOL
Your family thinks that you're anti-social & you miss way too many get togethers...they think you're either really depressed & need to get out & see people more, or they think you just don't like being around them. It never crosses their mind that you stay home, on the couch with an ice pack or heating pad, pain pills, and the only thing keeping you from crying is the knowledge that crying will only make the pain worse. (I suffer from this one way too often; I have so much pressure & anxiety over family, and family *should* be the ones to understand the most.)
You buy a book or movie at the store, and come home only to find out that you already have that one AND you've already read it! :)
Conflict or stress of any kind keeps hitting you. It only makes your IBS flare, your anxiety to skyrocket, and increases the urge to isolate yourself from the world. This happens online & real life. I hate fighting & bickering on support groups. (NOT aimed at anyone here!)
Ok, there's alot more, but it's late & I'll stop now. Feel free to add to the list. Funny or serious, it feels good to get it out. You've gotta be able to laugh at yourself sometimes. I asked my husband 3 times today whether or not I took my medicine at dinner or not. He just laughs. :)
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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Has anyone tried these supplements? Do they give MGers more quality of life by improving memory and overall well being?Thanks!Barbel
It is just so so frustrating trying to grasp concepts that you have mastered before, and trying to apply them in a different area.
I don't know how I am getting through college or why I am getting decent grades! I feel like I am making things up as I go along. I do know a couple of times my teacher has gone easy or there is a teacher who knows me so I suspect they are generous, but still. I don't know how I will get through the next three and a half semesters.
I have no idea how I will support myself. I mean, I miss so much school. And on top of this, I have other disabilities. One makes the other worse so it is just a never ending cycle of the disabilities affecting and making each other worse.
It is just so not fair and frustrating.
Okay, I think I completely forgot what the point of this was now, but I feel better for ranting and I also know I am so glad I am not alone in my difficulties.
I hate it when I am talking on the phone to a friend and in mid sentence I can't remember what I was saying! This happens to me a lot!
...you family thinks you are self centered or a hypochrondriac because you try to explain why you haven't been around
...I look in the mirror and see frown wrinkles crossing out the smile wrinkles because the pain has been there so long
....little kids think I am a mean old woman because of the frown wrinkles and the pain shuffle on really bad days
....that I can watch the same movie I watched three days ago and enjoy the whole thing because I can't remember what happened (The movie "50 first dates" comes to mind here
"You buy a book or movie at the store, and come home only to find out that you already have that one AND you've already read it!"
Been there, done that... with books, I mean.
But then I know I have a good book that I can give to a friend.
My biggest set back is being a few minutes late. It's not by 30 mins or an hour, it's 1 or 2 mins. I then end up feeling guilty so stay 15 or 30 mins longer at work to make up for it. I can't STAND the sarcastic remarks from hubby or family on this.
They don't realize that it takes all my might to even think about getting ready for work or a family get-together. Then, the fighting of the muscle fatigue and the the sudden IBS flare up right before you go out the door from worrying about being late.
Here's some things I find help me stay organized. If I didn't have FM, I'd be a professional organizer. My drawers, closets, garage, etc. are so neat but my house isn't "clean" because it's too hard on me to vacuum or mop floors.
Large white board on the main wall of my house.
Binder with sections on medical, phone numbers, notes, to do lists, maps, even movies and books that you've read, etc. When you finish a task or go to the appt, check it off.
Large wall calendar
Email memos to yourself and from auto programs for birthdays.
Smaller Communication note book by telephone.
Pill container
Keep your sense of humour!!!