
Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

deleted_user
My main reason for joining this group is because it is a place for me to really talk about my struggles with Fibromyalgia. I have never wanted to let the majority of my family, friends or business associates into my personal stuff. People just do not understand or they feel the need to give what they THINK is well-meaning advice. I am very selective with the people that I confide in. I am also very afraid of the "CLOUD" that still hangs over this syndrome. It would very much upset me to hear aquaintences making any kind of reference to my being neurotic or dramatic. Let's face it. Fibro is definitely the kind of problem that can turn you into a total whiner!!! People can only take so much of that. I myself, have a hard time dealing with the everyday people in my life that constantly complain. I believe in Positive energy!!
I think if you have one or two supportive people in your life (spouse or close friend, sibling) to get face to face sympathy from, that's sufficient. This thing can also become a self-fulfilling prophecy if we let it.
I'd like to hear some comments on this topic.
I think if you have one or two supportive people in your life (spouse or close friend, sibling) to get face to face sympathy from, that's sufficient. This thing can also become a self-fulfilling prophecy if we let it.
I'd like to hear some comments on this topic.
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
I really try to keep myself as light as I can...shareing only with my friends here that understand without all the Extra explaining...and of course my best friend Dean...my love for life...that is enuff for me
When they ask how I am I give a one or two word answer. If it is at its' worst they can see it in my face or hear it in my voice. The nice thing about only being around close people.
Long ago, I did my explaining, just once or twice and that was that.
I do not believe in the 'stigma' of chronic pain. I am not well and that's that. If people who were or are in my life don't like my being sick,, screw em, I have to much hurting me to deal with drama, and the pain of being upset at those closest to me.
Ouch
Maybe if you just exercised more... or maybe if you just took a hot bath... or of course everybody's all time favorite you don't even look sick. So I try to keep the specifics to myself also. However, I have learned over the years that sometimes I have to at least explain that I have lupus and now recently dx with fibro so that if someone's asking me to do something I can give them the real reason why I can't. It used to bother me but now I know that I didn't ask for my chronic illnesses so why should I feel bad for taking care of myself by sometimes having to say no to people. If I don't say no and just be in denial then I end up in the hospital which upsets my kids and my family which I really don't want. So I decided from now on I admit when I am not well enough to do something and I tell the person why. I have my Mother (thank God for her to whine to) It's kind of funny because it always seems like we Moms always get to be the ones to listen to all the whining no matter how old our kids get. But I know I wouldn't have it any other way. I want to be the one my kids come to when they need comfort just like my Mom. However, there is always The best comforter, friend, father, and He is always for everyone and that is Jesus. Without Him I would be nothing and would never be able to deal with my life with this chronic disease. We are never alone we always have God and His Son Jesus.
I respect and admire your stoic stance on this disease and I mean no disrespect but I am one who will not suffer in silence when I know the truth about this disease and the cover ups that exist. I complain loud and clear to anyone who will listen and I educate and help others discover why they have this disease. For that I am proud. You are okay in my book and so am I.
There is no medical advice here and this is my opinion.
I love DS for that reason because this is where I can just be me and not be judged.
Deep down I am an eternal optomist and hopeful.
Right now I am in pain. My legs won't let me sleep. I can say that here and you understand. After an hour of being a contortionist in bed I got up and can come here and read and hopefully the legs will stop hurting.
In the real world nobody wants to hear that. I keep it light and pleasant with them.
Jessica
I'm practically yelling it from the rooftops. It does feel better. I've met so many others that have FMS and it feels good to meet someone in person who knows what I'm going through and possibly able to help them.
I keep my doctor informed on any new treatments and getting her to do her job better. Wouldn't that be nice if everyone had an understanding and knowledgeable doctor?
I told my boss at work and she's very understanding and helpful. I tell her that I'm unable to move a table myself but can if I get someone to help etc.
Others won't know what we go through if we don't TELL them. Inform someone new today.