I have only heard of one other person here that has this diagnosis, is it that rare? How did you find a good Dr.? I live near a big city, Fort Wayne, IN, and can't find much and when I call they won't tell me anything, like what aproaches they use. They all just say "you need to be evaluated first"! I can't afford to pay hundreds of dollars for the eval. to find out they don't give out narcotics, or they don't know much about the condition or how to diagnose it properly, or to just be sent to physical therapy again. I'm so frustrated!!
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I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...