I know other people have it worse than me- worse symptoms, longer flares- but do you ever get used to how fast the pain comes and how it takes over? Do you ever stop crying when it hits you so hard and you can't even hold a book to read because your arms aren't working- or that typing on here is actually taking everything you have? Do you ever really stop hoping that your good day will keeping going and that another bad one won't come? Does anyone really get over this? Does anyone have people in their lives who really understand and can pick up the pieces for them when they can't take care of things? Do we just have to learn to deal with it, with the unpredictable nature of it, with the uncertainty- and then the knowledge that there really isn't a treatment or drug that cures this? I'm really not trying to be negative- I was just wondering if it ever gets easier?
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Morning all, I thought I'd get this rolling (unless someone else is getting it rolling and I didn't see it or they beat me to it, then follow theirs). Last night we had NationalNight Out in the neighborhood. Everything was going great, everyone swooned over Tank, but on the walk back (which is about 2 blocks away) I looked down at Danno's hands and they were turning purple, even his...