Fibromyalgia Support Group

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dizzy spells

deleted_user
deleted_user
i have only had fibro for just over a year, so i am new at this. i learn something new about this lovely disease every day. for the past week por so i have been experiencing a major flare. it started when i found out about some financial trouble i was in, and then the weather turned cold and i have been in more pain than ever before. i have also been having dizzy spells so bad that i fell o ver while standing in my bedroom yesterday. i luckily caught myself and managed to fall on my bed, but it scared me because what would have happened if i had fallen down somewhere else? maybe even hit my head on something and then it would take days for somebody top notice i wasn't okay. (i live alone)

is this normal? does anyone else get these attacks of dizziness? i feel like my balance is completely off most of the time now. before it was only stubbing my toes and banging my shoulders into door jams. does anything help? am i going to be in this much pain all winter or is it just a very long flare? help!
tloree
tloree
My balance has been off too. But I am being evaluated for MS on Tuesday...So I am not sure if it is normal or not. I would have said yes until recently. Sorry I cannot be of more help.
TAm
deleted_user
deleted_user
Yes,Kris.

Unfortunately I lose my balance alot and get dizzy. Another one of the joys of fibro. I'm glad you are ok.
Take care of yourself!

Hugs,
Laurie
deleted_user
deleted_user
YOU MIGHT NEED A CANE AROUND THE HOUSE, I USE ONE HERE AT HOME...LOVE...HELEN
PeaceN2You
PeaceN2You
I can't definitely say it's fibro related, but I have balance problems. I wouldn't call them dizzy spells - I just sort of fall over sometimes.
CarrieinSK
CarrieinSK
It does sound like you are in a bad flare up. You should eventually adjust to the weather but if not, there might be something else going on with you. If it continues too long, please see a doc.

I get dizziness, what I call "bobblehead syndrome" where my brain feels like it's bouncing around, drop things, tip and/or fall over and stub toes.

Are you getting enough sleep?

Can you get one of us, or a trustworthy friend to be your email buddy so you can check in with us to know your okay?
deleted_user
deleted_user
Yes i get dizzy sometimes and lose my balance easy. I use a cane. It may be a good idea to check it out with dr. to rule out anything else though. marilyn
deleted_user
deleted_user
I do get that. I think my blood pressure has a tendency of dropping. I also have the balance problems. I always attributed it to ear problems, but who knows? The smallest problems can end up being another common thread among us fibroids!
deleted_user
deleted_user
yes, I have the dizziness at times too. I have already been tested for MS and it was negative. It's normal though for them to test for MS, because that's one of it's main symptoms.
deleted_user
deleted_user
Yes Baby,Its another lovely symptom!!!!!!!Be safe
deleted_user
deleted_user
Always get a new or worsening Symtom checked by your Dr.
I get dizzy spells when I am in a Flare...ringing in my ears...yet No infection present..Not as extreme as Vertigo...Just a bumping into things mostly...sometimes worse...
I hae been pretty much in the worst flare I have yt t experience since August... feel half Ok for a while...and then down I go again...is driveing me insane !!
deleted_user
deleted_user
That's what we call vertigo. You get to act drunk without actually imbibbing. Lovely, isn't it.

There are days that I don't dare get out of bed. I don't know what can be done about it. I see my doc in January and have a list of things like that I will be asking him about.

Ask your specialist what can be done.

I am fortunate to have a wonderful hubby who takes total care of me when that happens.
deleted_user
deleted_user
MICKI5555 HAS BEEN GOING THRU THAT, OR IT'S REAL CLOSE, WOULDN'T HURT TO CONTACE HER...LOVE...HELEN
redsilverfox
redsilverfox
YA, IN FM TERMS IT IS CALLED "DISEQUILIBRIUM" OR STATE OF UNBALANCE
redsilverfox
redsilverfox
A WALKER OR CANE(S) HELP!!!!! THEY KEEP ME UPRIGHT AND U DO NOT BOUNCE OFF THE WALLS ETC., BOING!!!!!! OR TRIP OVER NOTHING!!!!! LOL, HUGS!!!!
Micki55555
Micki55555
I have recently been diagnosed with BPPV ( Benign Paroxysmal Positonal Vertigo)
http://www.dizziness-and-balance.com/disorders/bppv/bppv.html
I have been told by three doctors that this it totally NOT related to fibro in anyway. This condtion occurs when the vertigo is brought on by change in head position such as certain movements of the head.. rolling over in bed..moving the head suddenly or changing the postion of your head such as picking up something off the floor etc..
I also have dizziness that is a sense of imbalance..this is more the fibro kind and it is worse since I have the vertigo..
The best way I can explain this is to decribe vertigo as the room spinning really fast around yo..like you are on a disney ride.. the kind of dizziness that usually goes with fibro is more an imbalanced feeling, lightheadness, weakness, unsteadiness.. neither of these is pleasant but the SPINNING of the vertigo is the worst to me.
I dont know if this helps at all but this is what I have now...
DS has an area for this problem.
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