Does anyone have trouble with terrible leg pain that is there all the time except when you lie down? From the moment I put my feet on the floor it starts. It is worse some times during the day then others and if I try to just stand it is terrible. It feels like tightening and sometimes cramping of the large muscles in the calf and thigh. Sometimes only the calves and other times both calves and thighs but always evenly on both sides. Shopping in the mall is torture. I take zanaflex every day which is a muscle relaxant which helps some but does not make this bearable on days when I must be active.I am a nurse and at work I go through hell. Sitting in meetings is awful because I can't keep my legs still because they hurt. I have had a sleep study for RLS and it isn't that. They are fine at night and never disturb my sleep. Has anyone had this experience?? Please tell me I am not losing my mind. My rheumatologist listens every visit and just nods and never does a thing about it. It is almost like he thinks nothing of it. It may not sound like much but living with it is horrible. Anyone having this problem also?????
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