Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Can anyone tell me about CFS ???

deleted_user
deleted_user
It's me again lol.. I have been having a terrible time with my energy level. I can't seem to make it pass 3:00 in the afternoon without crashing and having to go lay on my heating pad. I don't know if it's CFS or just FM doing it. I have had FM for over 20 years but I haven't felt this tired in a long time.

Question - what are the signs of Chronic Fatigue syndrom??? I really don't want or feel like I need to sleep all the time I just can't get my body moving and it's starting to scare me because of the fatigue.

Any comments would be helpful...
V
P.S. I'm leaving in 10 minutes to get my brand new HUGH heating pad...yeah
deleted_user
deleted_user
My doctor told me that everyone who has FM also has CFS, it's just part of the package. So that totally exhausted, can't take another step, too tired to hold my head up is just another thing to deal with. I haven't found any solution for it. I just rest when I'm so tired, but what really sucks is that resting doesn't really help..I hope someone else had something that will help us both. I got my electics (mattress pad and throw) out this morning. You're gonna love yours)!
deleted_user
deleted_user
I was diagnosed with Chronic Fatigue Syndrome in 2003 and was told I've had it since my 7th grade track wipe out in 1978. Basically for me, Chronic fatigue feels like exhuasting wiped out feeling...as if you have had the flu for two weeks and had been bedridden the entire time, and your body is so weak it is ready to collapse and all your muscles are yet weak and everything is just mildly crappy achy feeling. To get up to DO ...ANYTHING takes energy so you really think about what you really have to do and the rest gets put on the side burner because feeling wiped out hits ya in a snap. My muscles and bones often have the sensation that they are warm but I am not feverish or having a fever. I think also The Spoon Theory explains chronic fatigue well
www.butyoudontlooksick.com
left had side blue column, scroll down, cick on The Spoon Theory. There are more signs and symptoms of Chronic Fatigue with lymph nodes that I have not experienced.

The fatigue has always wiped me out. I've learned to pace myself through the years. I can do some work, OR I can take a shower OR drive the car a short distance...OR....and it cuts into a LOT of plans...

I'm not sure how others deal with their fatigue, but I've always paced myself in accordance to how I felt that day, ...some days crappy, other days majorly crappy. I wish you well Hugs Ellen
deleted_user
deleted_user
IT'S ALL PART OF THE FIBRO, BLENDS TOGETHER....NOT ENOUGH REAL SLEEP....HELEN
Dixe4me
Dixe4me
I'm learning to listen to my body. If I am tired and lay down for a nap or just rest my eyes for a while I can get up with renewed energy (most of the time) but if I fight it I feel crummy all day and don't get over it even when I do eventually lay down. So I listen to my body and I do much better.
deleted_user
deleted_user
Yes for most ofus we will have both.At first I started out with just feeling the fatigue,run down..and sometimes my muscles just hurt alittle.But not long after lower back surgery came BONE CRUSHING FATIGUE I would rest and it would wax and wane..then as time went on things started changing YHE PAIN of FIBRO caught up with the CFs and together the person I was started to vanish.
mynameisD
mynameisD
I am like Ladybug, I have not found the answer so I just take a nap almost every afternoon. I have tried going to bed early and if by some miracle I can get there by 7pm then I am okay the next day. I have tried vitamins and they help some, but I don't have any difinitive answer for you. You should just listen to your body and adjust accordingly to it's needs. I hope this helps some.
deleted_user
deleted_user
OMGosh I must have it to !!!
I get up with hubby , to see him off to work..between 3-4am ,I try to take a morning and afternoon nap..sometimes I can skip one , but I just sleep longer during the other. If you look at my bloodwork, I am as healthy as a horse..but I am so fatigued that even something as simple as a shower and I have to lie down,and usually fall asleep. I dread driving because I am so afraid that I will fall asleep...I have fallen asleep sitting in this chair while on-line.It is scary...I try not to cook unless hubby is home ...that way if I feel like falling out ..I can without worrying about setting the house on fire...ARE WE HAVING FUN YET????????
Sandra
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