Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

3,845 Members
48,088 Posts
1 Online
Muscles & Bones
/ Fibromyalgia Support Group

anyone have this experience

deleted_user
deleted_user
I am not sure which board to post this on but I started here. My sister that is moving here from Pa has fibro,cfs,Ra and many other conditions. The problem is she is on so many meds and lots of them are the same. FOr instance she is on 4 antidepressents,4 preventive for mmigrains, and 4 anti inflammatory drugs. Anyone else experience being on a lot of the same type of drugs. I can understan more that one antidepressent as I am on 2 but 4. On top of that any rheumatogist that I have been on first want to start you on a muscle relaxer and an anti inflamatory. She has no muscle relaxers but 4 anti inflamatory drugs yet her legs still swell so dosen't seem to me they are working. I told her once she moves she needs to see new doctors and start from scratch to see if something can't be changed. SHe is on 20 different meds and still feels horrible. JUst wondered if anyone else had this experience and if so could explain why so many of the same type drug.
Any help or comments would greatly be appreciated.
deleted_user
deleted_user
Care to share what the names are??
deleted_user
deleted_user
have to look them up. I know for the migrains ins zanxles, the ancle and predcibe uou have to check outround
deleted_user
deleted_user
Well, I hate to say it, but that is not all that unusual for Fibro patients with related problems. But, having doctors who are all in the loop, and using one pharmacy, if possible, will help. Have her get her Vit. D levels checked. It is a simple blood test, and if those levels are low, it can account for tons of the problems she is having. And, be sure all the diagnosis are correct. Fibro can be the culprit for so many, many things. And, yes, depression,is part of the game. Does she need all of those anti-depressants? Only a really good doctor can tell anyone that. But getting re-evaluated by someone who fully understands Fibro - and do not assume that just because someone has Rheumatologist behind their name, they are knowledgeable. The Internet is a great way to find someone who specializes in Fibro and related diseases. You don't say where in PA you are, but you cannot be far from some excellent clinics. That would be my suggestion. She needs all the love, patience, and help you can muster. Those of us with this disease really appreciate family helping, but it sometimes can be perceived as meddling, so go easy. That is my suggestion. Good luck and prayers and hugs.
CarrieinSK
CarrieinSK
It never hurts to get a second opinion or a new doctor. It does sound like a lot of the same thing. Maybe she could go through them all with the doctor as she may not need some of them or different ones of others.

I hope she finds a good doc that will listen and know how to deal with FM.
deleted_user
deleted_user
IS SGE GETTING ALL THESE MEDS FROM THE SAME DR. IT'S VERY ILLEGAL TO HAVE MORE THAT ONE DR YUGET MEDS FROM. SHE COULD GO TO PRISON FOR THAT..
deleted_user
deleted_user
That is my concern. Maybe going to different docs just trying to find an answer and ending up with a bundle of the wrong answers (meds) especially if she is taking them all without each doc knowing or maybe just picking and choosing which ones she takes each day. This could actually cause her more problems. Ya might need to get a little more info on who gave the meds and if not all from one do the others know, and maybe just maybe one didnt work so they prescribed another and she is just confused about what she is supposed to be taking in the first place???? Just having brain diarrhea...the thoughts just keep pouring out!LOL
deleted_user
deleted_user
Sometimes the drugs just counteract one another and end up doing nothing to help. But as said, it's not unsual to be on that many drugs with so many health issues. Sometimes one drug will help in away the same type of drugs won't (like antidepressants).
deleted_user
deleted_user
the meds are probably making her feel worse. They are always the answer. My son was recently taken off all his meds which are for some of the reasons your sister takes them. He is now much better and he is not angery anymore and can cope better on a daily bases.
deleted_user
deleted_user
I would have to get her list cause truthfully I can't remember all the names
deleted_user
deleted_user
I would have to get her list cause truthfully I can't remember all the names
deleted_user
deleted_user
She goes to different doctors all recommend by her primary doctor because she has several issuses. She does use one pharmacy and all the doctors are aware of all her meds from all the other doctors. We plan to just move her here and start over
Posts You May Be Interested In
  • irishwriter

    come unwind in the bp lounge

    Posted by: irishwriter
    Last Reply: kisses2016
    7992
    theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
  • Rizen

    Walk a Day

    Posted by: Rizen
    Last Reply: mujicaptsd
    2562
    I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...