Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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AN IDEA..(LIGHTBULB WEN'T OFF)

deleted_user
deleted_user
I was just thinking...does anyone think that we could all band together and try to get family members friends and doctors to observe or even participate in this site to hear our stories and the difficulties pain isolation and guilt we go thru...Doctors should give it a serious thought since they treat fibromyalgia pts. I mean if they treat them isn't it real?? maybe all these people could understand more if any of them would be willing. it may take time to get it to work but, it is just a thought..what do you all think.
deleted_user
deleted_user
I think it would be great if we could make it happen
deleted_user
deleted_user
My rheumo is very aware of this site. I have taken so much info with me that ive taken off of this site. I am not sure if he has ever been here, i doubt it but he knows i am here and knows that i feel this is a very wealthy support system for me.
deleted_user
deleted_user
Thats a good idea hon. I was actually trying to think of a way or ways to raise national awareness of fibro.
deleted_user
deleted_user
It sounds like a good idea. Marilyn
deleted_user
deleted_user
Thats a good idea to get doctors on board. It needs to be an international awareness, cos believe it or not USA is more aware than UK. I heard you have an advert for it, or mentioned in an advert... not here, it is totally ignored, and the only support (fmauk)there is, is nowhere near as supportive as DS
deleted_user
deleted_user
that would be a great idea but do you actually think drs would take the time to actually sit and read these threads i kinda doubt it. it seems an unreal thing to me. family and friends yes doctors well hmmmmm i don't know.
love trish
deleted_user
deleted_user
Although uncertain of the results we can get..it is worth a try, if we don't try we will never know...I have been thinking about bumper stickers....what do you think of that as one of our approaches ???
redsilverfox
redsilverfox
d. S. HAS BADGES FOR YOUR COMPUTER SITES TO SEE, ETC., SEE BOTTOM RIGHT HAND CORNER OF EVERY PAGE & CLICK ON IT!!!!! OR ASK DOUG & D. S. !!!!!!!
deleted_user
deleted_user
I might get slammed for this but if we have doctors that are going to come to this site, they might see the abundance of QUEEN posts and think this site is a playground instead of a support group/information site.

I know many here are enjoying the laughter and the fun but there are times when I come on and see 5-6 QUEEN topics on the front page.

This might be something to think about if we want to truly promote this board as being serious about promoting awareness of FM and helping "non-believers" understand us better.
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