
Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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I hear it doesn't progress. Ok, so did all of you end up in wheelchairs right off the bat? I hear people talk about canes, walkers and such and I am not at that level.
Does this mean I am "safe"? That mine will never get that bad? Or does it just mean it will hurt me every day of my freakin life and never go away but I don't die from it?
Help! That sounds like just torture. No end? Just like this til we die? I can't even imagine what I would do if it were at that point. I don't think I have the inner strength to survive that.
You people rock! You are strong and steady and always willing to extend a helping hand. How do you do it?
Please someone tell me that I am one of the lucky ones... my pain every day is about a 7. If I could get to 4 then I think I could go back to work. But not if this gets worse.
Am I lucky? This is the worst it will be? Or am I totally misinformed? Or did I just misunderstand...
Does this mean I am "safe"? That mine will never get that bad? Or does it just mean it will hurt me every day of my freakin life and never go away but I don't die from it?
Help! That sounds like just torture. No end? Just like this til we die? I can't even imagine what I would do if it were at that point. I don't think I have the inner strength to survive that.
You people rock! You are strong and steady and always willing to extend a helping hand. How do you do it?
Please someone tell me that I am one of the lucky ones... my pain every day is about a 7. If I could get to 4 then I think I could go back to work. But not if this gets worse.
Am I lucky? This is the worst it will be? Or am I totally misinformed? Or did I just misunderstand...
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My rheumo has told me that since seeing him at my very first apt. my pain has gotten worse and is now all over, from head to toe.
But, at this time I have no faith in my rheumo as my apt. did not go well at all.
See my discussion i posted last night about my rheumo apt, that didnt go well.
I cant say if i will ever end up in a wheel chair or having to use a cane. But i know that if he takes me off all my meds i will end up in bed most days pretty much all day.
My pain is always at least a 7, most days an 8. I don't often have time to sit and relax, just to veg, lay on the couch and do nothing. Right now im working on some tests for work but am taking a small break.
I hope we wont ever end up in a wheel chair or even worse bed ridden.
Keep hanging in there and don't lose hope!
About the progression, yes it gets worse. But, it's not the fibro they say. They say it's other autoimmune diseases that get you, because your immunity is so messed up. Like, I started with hypothyroidism. Then I got Fibro in 2001. Dx with Arithritis in 2006. Then last Aug. I was Dx with Connective Tissue Disease. These are all autoimmune diseases. So is it progressive, yes and no. It's all in the way you look at it. Sorry that you have to have it. It's a stinker of a disease.
Fibro can be bad..get better..come back bad again..most people have it this way..I was using a walker in 1995 and had periods when I could walk normally for several years..I have ALWAYS had pain to one degree or another..it is always there./but it does not do STRUCTUAL damage and there is always the possiblity of remission.
And since so much research is being done on it now I think the possibility of finding the exact cause and cure are very likely very soon..
Hugs Micki
http://www.fibrowelcomepackage.com
Have a good day, the best you can.
Sheila
Boni, what new symptoms did you get? I am questioning if I have the myofascial pain as well as I have sooo many big knots in my back. Do you know much about that?