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My new doctor told me I don't have Fibromyalgia but that it's Chronic Fatigue. Whatever! Whadya got?
He says it's caused by a virus. I looked it up and here's something I found interesting. Has anyone else heard of this?
Potential Animal Virus Identified in Chronic Fatigue Syndrome Patients
by Karen Lee Richards
for About.com
Updated: June 1, 2006
About.com Health's Disease and Condition content is reviewed by the Medical Review Board
Filed In:
1. Research
Scientific research funded by the National CFIDS Foundation, Inc. (NCF) is providing preliminary confirmation of a new virus identified in chronic fatigue syndrome (CFS) patients. This ongoing research dovetails with a completed research project conducted by Cryptic Afflictions, LLC, a private company.
Cryptic Afflictions, LLC Research
According to the NCF press release, Dr. Steven J. Robbins, virologist and Chief Executive Officer of Cryptic Afflictions, LLC discovered a major neuropathogen identified as an RNA virus designated as Cryptovirus. Substantial clinical and molecular evidence indicates that this virus is involved in the development of neurological disorders that include Chronic Fatigue Syndrome (CFS), Multiple Sclerosis (M.S.) and Idiopathic Epilepsy of unknown cause.
Dr. Robbins' evidence includes:
the presence of virus-specific antibodies in the serum and cerebrospinal fluid of patients suffering from these disorders.
the ability of the virus to cause virtually identical disease in experimentally-infected animals.
nucleotide sequence data that indicates that the virus is pandemic and represents a single virus species much like measles.
Cryptovirus is most similar to Parainfluenza Virus-5, a rubelavirus. Another rubulavirus related to Cryptovirus and Parainfluenza Virus-5, that has gained national attention for its large outbreak, is the mumps virus.
NCF Research
Regarding the NCF research into the potential role of Cryptovirus and Parainfluenza Virus-5 in chronic fatigue syndrome, Professor Alan Cocchetto, Medical Director for the Foundation stated in their press release, "Our own funded research first confirmed the lack of a vital protein, known as Stat-1, in the blood of patients with Chronic Fatigue Syndrome. Stat-1 plays an indispensable role in immunity. Without this protein, patients are unable to effectively fight viral and bacterial infections. Thus, the next logical question to be answered was 'Could a virus be causing this Stat-1 depletion?' " Cocchetto continued, "Parainfluenza Virus-5 is a virus that had to be seriously considered as a possible piece of this medical puzzle because it directly targets and destroys the Stat-1 protein."
Putting It All Together
It was at this point in the NCF research that they learned of Dr. Robbins' earlier discovery of Cryptovirus specific antibody reactivity in CFS patients. Dr. Robbins had tested 56 serum specimens from CFS patients along with 11 matching cerebrospinal fluid samples obtained from physicians in Brisbane and Southeast Queensland, Australia. Dr. Robbins found that 96 percent of the blood samples and 91 percent of the spinal fluid samples tested positively for Cryptovirus specific antibodies.
NCF reported in its press release that their scientists utilized the NIH Genbank database to find the nucleotide sequence for a specific viral protein of Cryptovirus that matched 100 percent to the porcine (swine) strain of Parainfluenza Virus-5 known as the SER strain. In 1994, scientists at Bayer AG in Germany first isolated the SER strain from swine with Porcine Reproductive and Respiratory Syndrome. "This may represent a zoonotic process since zoonotic viruses are those that can be transmitted between animals and people" stated Cocchetto.
Gail Kansky, President of the NCF commented in the press release, "Here we have what appears to be the same viral strain of Parainfluenza Virus-5 on two continents and in two different populations, swine and humans." The Foundation is currently funding further research.
Source: National CFIDS Foundation, Inc., 05/31/06
He says it's caused by a virus. I looked it up and here's something I found interesting. Has anyone else heard of this?
Potential Animal Virus Identified in Chronic Fatigue Syndrome Patients
by Karen Lee Richards
for About.com
Updated: June 1, 2006
About.com Health's Disease and Condition content is reviewed by the Medical Review Board
Filed In:
1. Research
Scientific research funded by the National CFIDS Foundation, Inc. (NCF) is providing preliminary confirmation of a new virus identified in chronic fatigue syndrome (CFS) patients. This ongoing research dovetails with a completed research project conducted by Cryptic Afflictions, LLC, a private company.
Cryptic Afflictions, LLC Research
According to the NCF press release, Dr. Steven J. Robbins, virologist and Chief Executive Officer of Cryptic Afflictions, LLC discovered a major neuropathogen identified as an RNA virus designated as Cryptovirus. Substantial clinical and molecular evidence indicates that this virus is involved in the development of neurological disorders that include Chronic Fatigue Syndrome (CFS), Multiple Sclerosis (M.S.) and Idiopathic Epilepsy of unknown cause.
Dr. Robbins' evidence includes:
the presence of virus-specific antibodies in the serum and cerebrospinal fluid of patients suffering from these disorders.
the ability of the virus to cause virtually identical disease in experimentally-infected animals.
nucleotide sequence data that indicates that the virus is pandemic and represents a single virus species much like measles.
Cryptovirus is most similar to Parainfluenza Virus-5, a rubelavirus. Another rubulavirus related to Cryptovirus and Parainfluenza Virus-5, that has gained national attention for its large outbreak, is the mumps virus.
NCF Research
Regarding the NCF research into the potential role of Cryptovirus and Parainfluenza Virus-5 in chronic fatigue syndrome, Professor Alan Cocchetto, Medical Director for the Foundation stated in their press release, "Our own funded research first confirmed the lack of a vital protein, known as Stat-1, in the blood of patients with Chronic Fatigue Syndrome. Stat-1 plays an indispensable role in immunity. Without this protein, patients are unable to effectively fight viral and bacterial infections. Thus, the next logical question to be answered was 'Could a virus be causing this Stat-1 depletion?' " Cocchetto continued, "Parainfluenza Virus-5 is a virus that had to be seriously considered as a possible piece of this medical puzzle because it directly targets and destroys the Stat-1 protein."
Putting It All Together
It was at this point in the NCF research that they learned of Dr. Robbins' earlier discovery of Cryptovirus specific antibody reactivity in CFS patients. Dr. Robbins had tested 56 serum specimens from CFS patients along with 11 matching cerebrospinal fluid samples obtained from physicians in Brisbane and Southeast Queensland, Australia. Dr. Robbins found that 96 percent of the blood samples and 91 percent of the spinal fluid samples tested positively for Cryptovirus specific antibodies.
NCF reported in its press release that their scientists utilized the NIH Genbank database to find the nucleotide sequence for a specific viral protein of Cryptovirus that matched 100 percent to the porcine (swine) strain of Parainfluenza Virus-5 known as the SER strain. In 1994, scientists at Bayer AG in Germany first isolated the SER strain from swine with Porcine Reproductive and Respiratory Syndrome. "This may represent a zoonotic process since zoonotic viruses are those that can be transmitted between animals and people" stated Cocchetto.
Gail Kansky, President of the NCF commented in the press release, "Here we have what appears to be the same viral strain of Parainfluenza Virus-5 on two continents and in two different populations, swine and humans." The Foundation is currently funding further research.
Source: National CFIDS Foundation, Inc., 05/31/06
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I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
If he think's it's CFS and not FM, do you mind telling what your main symptoms are? Pain or fatigue?
I have been diagnosed with both and I can tell you exactly how mine started. It started with Mono which is a virus. Others start with Lyme or Lupus.
But not everyone starts with a virus. Many have been sick all their lives. Others got it after some sort of trauma.
Like I said, lot's of theory's and no answers yet. If someone could figure out the answer as to how we get it then we would be well on our way to a cure.
I've been diagnosed with both. I had pneumonia when I was eight. (there's a theory that micoplasmas are the cause) In high school, while I was very athletic, on every team possible, my mom was always on me for sleeping too much.
I had 4 kids, my youngest had a life-threatening illness that I had to fight an HMO to get treated. Following her surgery, after she was pronounced cured, I got very sick, my husband had his mid-life crisis and started "spending time" with other women and became emotionally abusive. I got an STD so I threw him out.
I got better for awhile after that but after getting dumped by my church friends and the stupidest custody battle ever, my health took a turn for the worse. My mother had a stroke, then another, then she died. The symptoms worsened.
I know stress makes my symptoms worse so I consciously work to de-stress my life but I'm really starting to think the cause is biological.
Sounds like your doctor just doesn't "like" the fibro diagnosis - that's not uncommon among doctors.
He checked me for the tender points. I've been checked by 4 different doctors. I don't know exactly how many I have but there are quite a few.
I don't know... I just wish...