Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I wrote this a week or so ago...after the Dragon Grins was posted on the board. I sent this letter along with a copy of the Dragon Grins to all my family and freinds. It has really helped everyone to understand what is going on with me and is keeping them from taking things personally. Perhaps we just need to educate the people in our own lives first.
DID YOU KNOW THAT...??
...even when I LOOK perfectly healthy I still suffer with Fibromyalgia Syndrome?
...I'm often so tired, I don't have the energy to do what needs to be done? That I am lucky to get done what HAS to be done?
...the pain and muscle spasms make it difficult to even get out of bed on some mornings? And make it hard to get around through the course of a day.
...many nights I lay awake with no hope of going to sleep or if I do manage to sleep, it is broken sleep making me feel more tired than before I went to bed?
...when I move around, the contact of my clothes makes my skin hurt?
...talking is sometimes more than I can manage? Especially finding the words I need to communicate my thoughts.
...I can't remember things? Even just minutes later...I would write things down but I can't remember where I put the note.
...I can be very sensitive to odors, noises, bright lights, certain foods and cold? I can't eat many of the foods I love. Strong odors will my my stomach just roll. Noises and lights will bring on headaches.
...I lose my balance at times? God help the time there isn't something to catch myself on.
...there are days when I don't dare get far from a bathroom? On these days, I feel as if I should be carrying a diaper bag.
...I suffer from severe headaches for days and/or nights at a time?
...I have lost the strength in my arms and can't lift anything over elbow height? Some days its hard to even shampoo my own hair.
...my pain and emotions along with my frustration come out in my words way too often? For these I apologize. Do not take them personally and remember where they came from and that they are no reflection on you in any way.
...I need to be hugged often. BUT gently, please! Don't pat, don't rub, don't squeeze!
...you are welcome to just sit with me. No words are needed and sometimes not really wanted. Often times just having someone that cares enough just to sit with you is all you really need.
I am sending this to you because I need you to understand how all encompassing FMS is. To you, I look like the same person I have always been...just "lazier" than I ever was. I long to be that person once again. In the meantime, I am battling this monster and hope that you will understand and join my battle with me.
DID YOU KNOW THAT...??
...even when I LOOK perfectly healthy I still suffer with Fibromyalgia Syndrome?
...I'm often so tired, I don't have the energy to do what needs to be done? That I am lucky to get done what HAS to be done?
...the pain and muscle spasms make it difficult to even get out of bed on some mornings? And make it hard to get around through the course of a day.
...many nights I lay awake with no hope of going to sleep or if I do manage to sleep, it is broken sleep making me feel more tired than before I went to bed?
...when I move around, the contact of my clothes makes my skin hurt?
...talking is sometimes more than I can manage? Especially finding the words I need to communicate my thoughts.
...I can't remember things? Even just minutes later...I would write things down but I can't remember where I put the note.
...I can be very sensitive to odors, noises, bright lights, certain foods and cold? I can't eat many of the foods I love. Strong odors will my my stomach just roll. Noises and lights will bring on headaches.
...I lose my balance at times? God help the time there isn't something to catch myself on.
...there are days when I don't dare get far from a bathroom? On these days, I feel as if I should be carrying a diaper bag.
...I suffer from severe headaches for days and/or nights at a time?
...I have lost the strength in my arms and can't lift anything over elbow height? Some days its hard to even shampoo my own hair.
...my pain and emotions along with my frustration come out in my words way too often? For these I apologize. Do not take them personally and remember where they came from and that they are no reflection on you in any way.
...I need to be hugged often. BUT gently, please! Don't pat, don't rub, don't squeeze!
...you are welcome to just sit with me. No words are needed and sometimes not really wanted. Often times just having someone that cares enough just to sit with you is all you really need.
I am sending this to you because I need you to understand how all encompassing FMS is. To you, I look like the same person I have always been...just "lazier" than I ever was. I long to be that person once again. In the meantime, I am battling this monster and hope that you will understand and join my battle with me.
-
I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
-
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
thank you for sharing it xx
Everything you said describes me.
Thank you for sharing this.
It said it all.
Jan