Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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I need help

deleted_user
deleted_user
I've been having MS type symptoms for the last month. I had a really bad "attack" where I couldn't walk for two weeks. Since then I've had numbness, tingling, pain, and blurry vision. Before last month I fell all of a sudden (without any warning, my legs just came out from underneath me). On top of this my Mom might have MS. Her symptoms started after mine and her Dr.s are ordering an MRI. I went to see my dr. and he was SO rude to me. He basically said since I have only had 1 episode that it is probably stress. I slurred my speech during my visit with him which was enough to convince him to order me an MRI, but it has been almost two weeks since he said he would schedule it and nobody has called me back. I just called them again and am waiting for a response. My latest episode was on Thanksgiving where I couldn't walk for like half of the day. I live in a kinda small town and I'm running out of options of Dr.'s who are FMS compassionate as it is. Now it seems he won't listen to me when I think I have something really major. How can I approach this Dr. and express to him that I feel that something is seriously wrong with me? Please help.
deleted_user
deleted_user
Sorry for all you are going thru, but it sadly is all too common. Did you read Doug/Ouch latest post on being your own advocate? It is helpful.I would continue to call and be very nice to the office staff, which is always key, just explain you are concerned and would appreciate any updates they can give you. It is very hard to wait on DR's offices, could it be they are waiting on approval from your insurance co? Good luck, and I hope it works out sooner then later for you.
Deb
deleted_user
deleted_user
It should not take two weeks to wait for insurance approval or the test to be scheduled, these things often get lost, going from Dr. to nurse, to scheduler. I wouls call again tom. and ask for an update, kindly explain why you are calling and that you did call yesterdat. A good idea when calling a Dr.s office is to find out exactly who you are talking with and ask for that person each time you call.
deleted_user
deleted_user
Be persistent! That is all we can do. If they act like they don't want to deal with you, maybe ask them if they would like to refer you to another specialist. I'm sorry for your trouble and I sympathize very much. Hopefully someone who is a nurse will see your post and offer some advice. I will be pulling for you!
deleted_user
deleted_user
I think you need to see a neurologist. Also, the old adage "the wheel that squeaks, gets the grease" still goes. I know it is awful, but if you want to be certain of service, you have to be a pain in the ass and call every day until they get it done.

The arrogance pf some of these doctors is more than I can take. Always ask questions, and always have a proactive attitude in approaching your care. Good luck sweetie and sending you a gentle hug. sue
deleted_user
deleted_user
If I had slurring of speech and couldn't walk, I wouldn't wait two weeks to even be scheduled for an MRI! And betweem the episode when you couldn't walk, the ongoing symptoms, and the episode in the doctor's office, that hardly qualifies as one incident, probably stress, in my book! And if it is stress, having to wait this long to find out certainly isn't helping your stress level. If you don't get a call from the dr today saying they have made an appointment, I would call and tell them you need it done now, or you're going to the ER. If you have any more slurring of speech, or being unable to walk, I'd suggest just that..go to the ER and find out what is going on. I wish you well, hugs
deleted_user
deleted_user
yes if you have any more episodes please just go to ER marilyn
deleted_user
deleted_user
I have been seriously thinking about going to the ER. My symptoms aren't "flaring" or whatever right this minute, but if I do get a really bad scare--I'm just going to go in. I'm so tired of having to basically sweet talk doctors so they will help me. Some days I just HATE having Fibromyalgia. Especially now because my Doc won't take me seriously with these other symptoms that are NOT FMS related. I'm SO frustrated guys!
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