don't know if this would be any help but try this link

http://www.healthboards.com/boards/showthread.php?t=53271 if it doesn't work type it in your web browser address bar
love trish

Just reading the subject line made me want to throw up. I can't even handle knowing there is a child out there that has this dreadful FM stuff.

Can you give us more info on what he has been through, how long has it been going on and if he is taking an meds to help him deal with this. Who gave him the dx?

I just need a little more info before I put my 2 cents in lol...
V

I am positive my daught -15 has it... family doc doesnt want to touch that dx., but she is doing ok with it, because I am helping her manage her pain and etc. Pain is not bad bad, would love to find more info on kids. and YES it makes me sick to think of her life too.

Wow, I have to admit surprise at them knowing so young that he has it. Tell him good luck and that I will be praying for him.

There are a lot of people with a lot of good information here at DS. You've come to the right place, but like socal, I need a little more info.

I've spoke with the parents and gave them the information for this site. I think they will be checking it out and posting. I just do not know the answers to your questions. You have been so helpful, I hope this helps them.

bump

Did you ever find some help hon?

THE ONLY INFO I HAVE IS FROM SOME OF THE TEENAGERS HERE. THEY WILL NOT USUALLY GIVE THEM PAIN MEDS B/C OF THEIR AGE WHICH IS AWFUL. I CAN'T IMAGINE GOING THRU THIS DISEASE W/O PAIN MEDS, THEY DON'T GET THE RESPECT THAT AN ADULT DOES B/C OF THEIR AGE, SO THEY HAVE NO ONE TO TALK TO . THE PARENTS WHO NO NOTHING ABOUT THE DISEASE, MAKE ALL THE RULES ABOUT EVERYTHING THEY DO, THEY DON'T HAVE A VOICE RE THEIR MEDS, THEY HAVE NO SOCIAL LIFE B/C OF FIBRO, NO ONE AT SCHOOL UNDERSTANDS THEM, SO THEY WALK BY THEM.I'M WONDERING IF ROCI IS STILL HERE, SHE IS 17 AND HAS NO SAY OVER HER LIFE, HER PARENTS DON'T EVEN BELIEVE IT'S FIBRO, JUST GROWING PAINS...I'LL TRY TO LOOK UP ROCIO AND GET HER FULL NAME...LOVE...HELEN

www.fmaware.org will have local support group info. I'd also like to add this teen to my secret santa project and send him something...if u are ok with it please send me a message, I am sure he could use a smile this christmas

bumping so she can try to get MORE info