Hi Kensei, I've had ET for many years. I'm 77 years of age, right now, and first noticed the ET in my early 40's. I'm taking 200mg of Propranolol (generic of Inderal), every day. 2 40mg tabs in the morning, 2 noon and 2 evening. The ET is still very pesky, but I am able to deal with it. The Propranolol serves TWO purposes for me, so I am not able to change medications. In all the years I've had ET, I have never experienced the type of symptoms that you are experiencing. Of course, that isn't to say that it ISN'T a symptom, but let's just say.....I've never heard of it, as a symptom. My brother
had ET for MANY years, and had it much worse than I do. I KNOW he never had those symptoms, either, so I would advise you to go to a GOOD neurologist to find out. Are you dropping things because of numbness or some other reason? I have NO idea if these conditions are related. In fact, I don't know what HD is.
Could you please tell me? Thanks. The one thing I've always found is that I can find out almost ANY information on the internet, so I'm going to check it out. I'd like to know what you find out.......OK? If I find out any pertinent
information, I'll add it to your "Replies". Good luck....SK77 (Kay)

HD stands for Huntington's Disease. Dropping things is more about the tremors, I think. I haven't had numbness as much as tingling in my fingers and feet. I've had slight tingling in my face.

Kensi, I also get tingling and/or numbness in my legs/arms too...also my face. I also get a lot of burning sensations, esp. on my face. I have many other symptoms as well. So far, I've been Dx with Fibromyalgia, Migraines, and ET ....tested, but negative for...MS, Lupus, Lyme Disease, Shjogren's, and numerous others that I can't even remember. My husband thought I was getting PD (Parkinson's Disease) since his brother has it bad. My (deceased) Mother has 4 couscins with ET and 1 (their sister) with MS. So, I guess it's genetic.

I was thinking that your symptoms sound like PD...maybe. I've heard many plp in the PD forum say that they started out with ET for years....then progressed to PD. This worries me. I'm afraid that I'll be Dx with either MS or PD in the future.
~Tonya

Kensei, here: had to get a new username, but I am the person that started the tremors and HD post. I went to see a neurologist in January. I was tested and HD was ruled out. He did re-confirm the EBT diagnosis. I also discovered that my tremors are dominant on my right side.
We spoke about medications. But, we came to the determination that the side effects would be worse than the tremors. I partake an occasional beer or two to settle my tremors down.

I've had ET for many years. Used to take Inderal for years and stopped taking them. Recently was put on Mysoline and stopped after 1 week. The side affects were awful and they made my tremors worse. I tend to get sore necks often as mine are in the head. The Neuro. said mine are upper trunk. Sometimes they affect my voice. I've never heard of RA or HD being related to the tremors at all. I was diagnosed with APS by the Rheumatologist, but that isn't related to the tremors.

Hey all:
Since the re-confirmation of the EBT, I am concerned about EBT being related or developing into PD. The idea of it lurks in the back of my mind. Is there a test that one can take or find out if one has the marker for such things?

--Thanks

Hey K,

I was told by my neurologist that PD doesn't have any tests. But, I was told that in PD, you continue to shake and tremor while at rest. ET, you don't tremor at rest. Also, with ET, your body, hands and face don't become "deformed or disfigured". In PD, your hands would definitely show a more rythmic tremor as well as your hands would look differently, like you were grasping onto something all the time. Your face would get a "frozen" look and your head would usually be in a weird position, like you are looking at something downward and next to you. I hope this helps hon and I hope that you can get some relief. Take care, Wolfmoon