I would like to let people know about SUDEP. My daughter died at 9 years old from this. Her doctor never told me about sudep and that someone could die from a seizure. She had Febrile seizures, which is seiaures from fevers, from 9 mths old til almost ten years old. He did an eeg and seen epilepsy activity in her brain so he changed her medicine to carbitrol.He never warned me to not let her take a bath, or swim while on the new medicine. She had a seizure in the bathtub. She was doing fine on the phenobarbital. She never in her life had a seizure without a fever. She was feeling just fine the day that she died. I don't know why he changed her medicine, because she had not had one seizure without a fever, but he did. I hope that me writing this message will help someone be very careful when changing medicines. I wish someone would of warned me. There is not a day that goes by, that I do not wish I would of known more or done more. I miss her so much. The pain never goes away. She was such a great little girl. Everyone loved her, she was so pretty and the light of my life. Her Brother who is 24 now is my only other child. He was the best brother a sister could have and misses her so much. I have her pictures posted on my member page.
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