Epilepsy & Seizures Support Group
Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...
This is an adjunct thread to "Will Oprah listen?"
There has been a lot of interest in getting things rolling. Here's the basic plan:
Step 1: Bombard talk shows with the idea of doing a segment or show on epilepsy until they do it.
Step 2: Bask in the glory of our triumph!
Here's the good news. I have contacted press contacts at both Montel and Rachel Ray, and they are going to get in touch with the producers. So it is imperative that we start e-mailing them now.
Here are the sites to use:
Rachel Ray:
http://www.rachaelrayshow.com/contactus/
Montel: http://www.montelshow.com/mail/
Here is a form letter you can use:
Epilepsy is a disease that suffers from many myths and misconceptions. It is a hidden disease. We would like to see your television program do a segment on epilepsy to help bring to light the disease, the reality of it and to help people understand who we are.
DO IT NOW! SPREAD THE WORD! The more of us that do it, the better. Get all of your friends to do it too. We can do this!
There has been a lot of interest in getting things rolling. Here's the basic plan:
Step 1: Bombard talk shows with the idea of doing a segment or show on epilepsy until they do it.
Step 2: Bask in the glory of our triumph!
Here's the good news. I have contacted press contacts at both Montel and Rachel Ray, and they are going to get in touch with the producers. So it is imperative that we start e-mailing them now.
Here are the sites to use:
Rachel Ray:
http://www.rachaelrayshow.com/contactus/
Montel: http://www.montelshow.com/mail/
Here is a form letter you can use:
Epilepsy is a disease that suffers from many myths and misconceptions. It is a hidden disease. We would like to see your television program do a segment on epilepsy to help bring to light the disease, the reality of it and to help people understand who we are.
DO IT NOW! SPREAD THE WORD! The more of us that do it, the better. Get all of your friends to do it too. We can do this!
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
when contacting and asking the said shows to air a segment?
You use the phrase "disease"
Epilepsy is a dysfunction of the nervous system and not a disease!
Your advertising albeit well and good! ...Please change the phrase to dysfunction of the nervous system as it is the correct term/explanation of Epilepsy.
My experience of living with epilepsy has shown me the social/emotional damaging issues that categorising of a disability can create!
People are naturally afraid!
Knowledge conquers fear!
Describing Epilepsy as a "disease" is therefore going to create more fear and subsequently prejudice!
I applaud you for your mission in writing to tv shows requesting a subject for discussion.
But please as an EP sufferer I ask you to portray our dysfunction as an illness/disability not a disease!