Epilepsy & Seizures Support Group

Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...

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Brain & Nervous System
/ Epilepsy & Seizures Support Group

seizure disorders

deleted_user
deleted_user
Just wondering if anyone out there has a child with a severe seizure disorder and a developmental delay(mild) caused by the seizures?
deleted_user
deleted_user
Although my daughter is 20 years old now.. she started having seizures a little over a year ago. Since May 30th she has had 249 seizure so far this month. She has a severe seizure disorder and will be having brain surgery on July 9th. She has Complex Partial Seizures. There is a chance that her problem is a degenerative disease and we will find out the results during surgery via a biopsy. Looking back - as my ex and I have done for the past year - we now understand why she had some problems. Especially with Multi-tasking and short-term memory loss. If she had not of attended a Charter High School we both agree (which is hard for us to do in the first place!) she wouldn't have done as well vs. a regular high school.. or even graduating under a regular program. Her first year of College didn't go well at all. If you aren't familiar - a charter school is private owned.. 3-4 classes a day Monday thru Thursday.

In hindsight this actually worked well in that she could stay focused on just a few classes rather than 7 or 8 from a regular school.

Her coordination has always been an issue as well. Was signing her up for gymnastics and the like to help with coordination. We just assumed - at the time - that she was more into dolls that wanting to be physically active. And - when she did become active she was a bit of a klutz.

We could be beating ourselves up forever and a day but as I stated.. since this happened a lot more of her past makes more sense today than it did way back when! Take care!
deleted_user
deleted_user
Hi chelleg, my son is three and a half and we have been going through this for three of those years. He also has a mild developmental delay but he only has seizures about every 5-7 days, but can also have two different types in one day (grand mal and complex-partial) like he did today about an hour apart. He has also had seizures that last for nearly 20 minutes.
We seem to have got nowhere with treatment as the sodium valproate doesnt work and we are looking at adding or changing his meds as in the last two months we have more than we did before. It's very worrisome.
Not only does he have the delay we have behavorial problems as well but I don't know if its that or because of other things.
I would like to hear more about your issues. xx R xx
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