I WANTED TO ASK IF ANYONE HERE THAT HAS EPILEPSY HAS HEARD OF OR HAD THE SURGERY CALLED A RESPONSIVE NEUROSTIMULATOR? IT IS MADE FROM (NEUROPACE). FOR ADULTS WITH INTRACTABLE (HARD TO TREAT) EPILEPSY.I AM ASKING BECAUSE I HAVE HAD THIS SURGERY AND IT IS BEING DONE AT OVER 28 DIFFERENT HOSPITALS IN THE COUNTRY THAT I KNOW OF.IT'S IN (CLINICAL TRIAL) RIGHT NOW.IT IS A SURGERY THAT HAS BEEN DONE FOR 6-7 YEARS NOW AND THE (FDA LISENCES) CAN TAKE A FEW YEARS AND SOME SURGERIES THAT ARE STILL IN THE (CLINICAL TRIAL)CAN TAKE LONGER.To GET THESE DIFFERENT SURGERIES THAT HAVE HELP ALOT OF PEOPLE IN THE WORLD, THOSE SURGERIES THEY MAY HAVE BEEN BLESSED TO HAVE THAT HAS HELPED THEM IN SOME WAY, PEOPLE THAT 1st HAVE THOSE SURGERIES,ARE PEOPLE THAT HAVE THEM WHEN THEY ARE STILL IN (CLINICAL TRAIL) THAT MAY BE BLESSED HAVING BETTER HEALTH MAKES THOSE SURGERIES POSSIBLE AND GET THE FDA LISENCES). yes, some may feel that you are being a RAT, but it IS NOT. When I first was told about it I didn't think I would ever do it. i LOOKED IT ALL UP ALOT TO LEARN MORE ABOUT IT AND WHAT MADE MY DECESSION WAS SEEING i COULDN'T HAVE ANY OTHER SURGERY i WANTED TO KNOW THAT WHEN I DIED I TRIED EVERYTHING AND i AM SO HAPPY I HAD THIS SURGERY.I have lived with epilepsy for 30yrs,having 11-13 or sometimes 11-15 a month and NEVER HAD 1 MONTH FREE WITHOUT A SEIZURE. I AM STILL IN THE CLINICAL TRAIL AND MY SURGERY 1ST ANNIVERSARY DATE WAS JUST THIS OCT.12TH. ALL THE EPILEPSY SURGERIES I WASN'T ABLE TO HAVE I asked about the VNS and the DOCTORS SAID MY SEIZURES NEEDED A QUICKER RESPONES,THAT THEY FELT THIS RNS-RESPONSIVE NEUROSTIMUALTOR COULD HELP ME BETTER BECAUSE OF THE WAY MY EPILEPSY WAS.I THANK GOD SO. This doesn't stop it for good.it will 50% or more or less everyone is different and so far I have some months 7-8,or 6-7 a month go at month 19 days in around free without one at times. I have never had that many free without a seizure before this surgery. I have always been thankful that I didn't have something worse in my life of health than what I had. Thank You for anyones reply.
Posts You May Be Interested In
I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??