I had a brain tumor removed in my occipital lobe 5 years ago. I've had migraines immediately prior to the surgery and afterwards. I got the epilepsy from the surgery. I have run through the gamut of anti-seizure drugs. Right now, I'm on Zonegran or Zonisiamide, but the migraines are killing me. I take the drug for a while, then I get a 3 day migraine. The only way to stop it is to get off the Zonegran. Does anyone have any ideas or suggestions? My epilepsy is weird, chronic lapsing into complex partial seizures. I see the head of the epilepsy department at a well established hospital. He is referring me to a headache clinic, but he doubts getting off the meds are stopping the migraines. In all honesty, the pain is so bad, I'd like to hack off the back of my head. The pain is mostly centered in the back where the surgery was - occipital region. I have run through some pain killers like darvoset, vicodan, etc. but I can't take them. They make me vomit.
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