Epilepsy & Seizures Support Group
Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...
I was wondering if anyone has experience with seizures and NOT falling... in both shaking seizures and 'drop seizures'...
1. My husband had a seizure tonight where he was shaking in his arms and upper body, but he stood the whole entire time. The shaking made me think it was a clonic seizure (he didn't stiffen first so it wouldn't be a tonic clonic for sure). Is it possible to have clonic seizures while standing or is it typical to fall first and then shake??? He's never done this before...
It wasn't a very violent seizure thankfully, but I kept trying to get him to sit down thinking it would be safer. Of course I couldn't get him to do anything. Even my putting a chair behind him and pushing at his middle wouldn't work... (sounds silly in writing, but it seemed sensible at the time).
This seizure was followed by a very frequent type of seizure/episode where he has problems walking and his leg/s give out:
2. My husband seems to have drop seizures, but doesn't drop. He will have 'episodes' where his legs give out (sometimes only one) or his back. This sounds similar to "drop seizures" in that he loses his muscle tone momentarily, but he has never fallen straight to the ground. He has grabbed onto me or a counter and prevented himself from falling that way or at other times he's been able to just kept trying to walk (ie: taking multiple 'air' steps with one leg before it will hold his weight for him to step with the other leg).
Has anyone experienced "drop seizures" with lack of muscle tone in certain areas only ie: legs only while maintaining muscle tone in the upper body and arms???
My husband is very fit physically I wonder if because he has good muscle tone in the first place the seizures affect him differently than they would someone else???
He's had these seizures since day 1 following his stroke last year.
Thanks in advance!
PS: I know I'm asking a lot of question... I really appreciate the help and hope I can help others once I know more myself!!!
1. My husband had a seizure tonight where he was shaking in his arms and upper body, but he stood the whole entire time. The shaking made me think it was a clonic seizure (he didn't stiffen first so it wouldn't be a tonic clonic for sure). Is it possible to have clonic seizures while standing or is it typical to fall first and then shake??? He's never done this before...
It wasn't a very violent seizure thankfully, but I kept trying to get him to sit down thinking it would be safer. Of course I couldn't get him to do anything. Even my putting a chair behind him and pushing at his middle wouldn't work... (sounds silly in writing, but it seemed sensible at the time).
This seizure was followed by a very frequent type of seizure/episode where he has problems walking and his leg/s give out:
2. My husband seems to have drop seizures, but doesn't drop. He will have 'episodes' where his legs give out (sometimes only one) or his back. This sounds similar to "drop seizures" in that he loses his muscle tone momentarily, but he has never fallen straight to the ground. He has grabbed onto me or a counter and prevented himself from falling that way or at other times he's been able to just kept trying to walk (ie: taking multiple 'air' steps with one leg before it will hold his weight for him to step with the other leg).
Has anyone experienced "drop seizures" with lack of muscle tone in certain areas only ie: legs only while maintaining muscle tone in the upper body and arms???
My husband is very fit physically I wonder if because he has good muscle tone in the first place the seizures affect him differently than they would someone else???
He's had these seizures since day 1 following his stroke last year.
Thanks in advance!
PS: I know I'm asking a lot of question... I really appreciate the help and hope I can help others once I know more myself!!!
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
I always thoguth they were petit mals, I don't really know what they are but I get something similair. I did not have a stroke i had car accidents. The doc's can't find the physical relation to the injury and the siezures but I know what my body tells me. Dpes he get them when he is physically or mentally exhausted? Does he get other things like mixing up words or forgetting things, faces or names.
It is amazing how much neroligical damage can affect.
Kelly
Kelly
My husband has had some tremors too, but they're different than the seizures in that he's totally aware and can talk to me during the tremors and can't during the seizures.
It makes sense if you've had a brain injury that the seizures are related to it. My husband's symptoms are apparently similar to someone with a brain injury from a car accident etc. He has improved a lot over the past year +, but still has some problems with word finding and saying the wrong words. At times he'll stutter over a word (for up to 3 minutes before!) that he knows in his brain, but he can't get it to come out his mouth. He has short term memory problems -- forgetting where things are or what job he's in the middle of doing... He's caused floods in our house at least 4 times from forgetting the tap on! Comprehension is a big issue too...
He is on seizure meds, but recently lowered them to test if they were making a difference. (I didn't approve of this experiment!). The seizures did increase so the meds must be making a difference. The dr. he talked to today said he needs to increase the meds if they aren't controlling the seizures completely.
It was interesting because a few days after lowering his pills he had a wandering seizure which he used to have all the time pre-meds. He paces around in a pattern and can't be stopped. This time he kept saying "I'm confused. I'm confused" before the seizure started and then he began the pacing.
Oh -- it seems like all his seizures come primarily in the evenings or when he sleeps. Also sometimes after waking up (this includes from naps too). They can happen when he's mentally exhausted (but don't seem to when he's physically exhausted).
You're right -- it is amazing how the brain affects so many things!
Hope things look up for you with managing your seizures and pain!
~ Chelsey
After my husband's stroke he had left sided weakness, but it wasn't really noticeable (except when he was trying to exercise) until a week later when he was finally diagnosed and stayed the night at the hospital. It seemed like the drugs they gave him at the hospital made his left sided weakness even stronger because he was dragging his leg when I first saw him at the hospital. He never dragged his leg like that before the diagnosis or since then...
He had right arm paralysis in Jan for about an hour which was out of no where. It may have been a tia or just a glitch in the brain??? We don't know for sure. Since his stroke was a fluke arterial nick and he has no risk factors for a stroke a tia doesn't seem very likely, but who knows??? He hadn't had a seizure that day that I was aware of, but had been exercising outside by himself prior so I don't know for sure... That's something to think about!
His legs giving out is pretty random -- sometimes left, but mostly right and sometimes both. It often follows a seizure, at times it comes before a seizure and at times it's just that and no typical seizure.
The brain is so complicated!
That's interesting to hear about the girl you work with having similar seizures.
That's true when his legs give out he is aware. With having had a stroke who knows what it could be... I've mentioned them to all his drs. including the stroke specialist from day 1 but no one has identified them or seemed too concerned about them.
Nichole