Epilepsy & Seizures Support Group
Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...
Hi everybody I don't post here much I hang out at the CFS forum. But I think that I should tell everybody about my seizures.
I Had adult onset epilepsy. I stared having seizures about 7 years ago the worst kind..Tonic Clonic Grand Mall Seizures.. also I had CFS for 6 years before that and felt really bad most of the time.
I followed a detox program..vit C.. and a malaria treatment- Doxy and primaquine phospate + some other things and felt much better.
I repeated the prosses a year latter and felt 95% better ..No more CFS!..I did the treatment a third time to kill any bugs that might still be left and my head aches even went away.
I felt so good I quit taking my seizure medication and have not had a seizure in over 7 months now!
I was having one seizure about every 6 months when I was on meds and about 1 a month when I was not on any meds.
My adult onset epilepsy has gone away...YEA.
Dr Hulda Clark says that epilepsy can be caused by parasites in your brain and can be killed by using black walnut hull and some other things and now.... I think she was right...
Primaquine phosphate can kill parasites and I did do black walnut hull and used a zapper. If you have adult onset epilepsy you might want to try this to see if you feel better.
Also........Get a Live Blood Test done........ I did one and my red blood cells had spikes on them.
This could have been a parasite or a mycoplasma or both.
I posted my blood video on my home page..You don't want your blood to look like mine.
Well if you have adult onset epilepsy and spikes on your red blood cells you might want to try the things that I did to see if it helps. I posted everything I did in my journal....
Please Don't stop taking your meds without your Dr advice.
Good luck everybody........... Doug Clean .....
I Had adult onset epilepsy. I stared having seizures about 7 years ago the worst kind..Tonic Clonic Grand Mall Seizures.. also I had CFS for 6 years before that and felt really bad most of the time.
I followed a detox program..vit C.. and a malaria treatment- Doxy and primaquine phospate + some other things and felt much better.
I repeated the prosses a year latter and felt 95% better ..No more CFS!..I did the treatment a third time to kill any bugs that might still be left and my head aches even went away.
I felt so good I quit taking my seizure medication and have not had a seizure in over 7 months now!
I was having one seizure about every 6 months when I was on meds and about 1 a month when I was not on any meds.
My adult onset epilepsy has gone away...YEA.
Dr Hulda Clark says that epilepsy can be caused by parasites in your brain and can be killed by using black walnut hull and some other things and now.... I think she was right...
Primaquine phosphate can kill parasites and I did do black walnut hull and used a zapper. If you have adult onset epilepsy you might want to try this to see if you feel better.
Also........Get a Live Blood Test done........ I did one and my red blood cells had spikes on them.
This could have been a parasite or a mycoplasma or both.
I posted my blood video on my home page..You don't want your blood to look like mine.
Well if you have adult onset epilepsy and spikes on your red blood cells you might want to try the things that I did to see if it helps. I posted everything I did in my journal....
Please Don't stop taking your meds without your Dr advice.
Good luck everybody........... Doug Clean .....
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I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...
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Has anyone tried these supplements? Do they give MGers more quality of life by improving memory and overall well being?Thanks!Barbel
This was a personal choice that I made based on how much better I was feeling and live blood test.
I also have a twin brother who has never had a seizure in his life so I know what was wrong with me is not genetic witch might not be the case for some people here.
Three years ago I felt like I was going to die from CFS after 12 years of being sick.
After I fully recovered I decided to reduce than quit my medication for epilepsy. I know there is a risk involved but also there are risk involved with continuing with the medication.
I do not recommend for anyone to stop taking there medication.
I only posted this for people whose situation is very very similar to mine.
No mater what, Talk to your Dr and follow his advice about any change in your treatment.
My case might have been unique since I think that my CFS was causing my seizures.
After more than one year of no CFS symptoms at all I decided to take the chance on reducing my seizure medication..... This won't apply to most people here.
I did look through all of the members here and there are 3-4 who do have CFS like I did.
I also notice a lot of people here had some other kind of disorders... Almost 50%.... Not sure what that means ...There was no pattern that I could see.
If some of you can cure your CFS like I did than after a year or two you might want to talk to your Doctor about reducing your meds..But that is your Dotors call not mine.
I also had the option of not driving much in the last year (no job, Thanks CFS)
So just in case something did happen I would not kill my self or others.
I did very strong treatments for malaria and mycoplasma and parisites.....+ detox and mercury removal.
I treated my self extensively for long periods of time. For me this worked. I don't know if the things I did will help others or not but since Dr don't know what causes epilepsy I felt I had to do something.
Here is one fact that most don't know...
90% of epilepsy suffers have the arscaris parasite in there brain...As compared to 30% of the general population.
In my case I believe that multiple infections and mercury were causing my CFS and my epilepsy..
This wont be the case for most people here.
At least for some there might be some hope.
Dr Hulda Clark also believes this to be true although I did not use just her protocol for parasite removal...
I used the strongest drugs available + her protocol.
I don't believe that Dr Hulda Clarks protocol is strong enough to kill all of the things that were wrong with me.
Read my journal if you want to see what I did it is a long read.... I spent over $9,000 in total..... I did not want to spend the rest of my life being sick and I am not sick any more....
PS: I am healthy now in spite of the crappy doctors that I had .... Not one Doctor that I had had ever cured anyone of CFS or epilepsy..... I did ask them.
Only time will tell if I am better but I am going to re-treat myself every year just to make sure my CFS never comes back.
......... Doug Clean .......
Oh..
Who posted a similar story? I would love to read what they did and find out if they are still healthy. As far as I know I am alone. Thanks...Doug
Congrats, and your story is inspiring. I know the kinds of doc that put you on to this as I went to one too. I too had mercury and several other metals off the chart and had the metal/magnet drink that is meant to pull it all out.
I paid a lot of money to see them and I went to my v good GP and he said that most people have similar readings and that they were so minute that it was laughable for a cause of seizures. There were heaps of aspects of my naturo app that I felt were an attemt to insight emotion and I didn't feel comfortable. In hindsight I feel a little duped but I had to give it a try because I felt despreate at the time. (also the graphs are too small with large intervals which greatly exaggerated the results.)
Well only time will tell If my seizures come back or not I hope not and I do still have a bottle of dilanten left if ever need some.
I do know this, I feel much better than I have in 14 years.
If you feel like crap all of the time get a live blood test done to see if you have anything living in your blood like I did.
If you do.... kill it..... and you will feel better.
This might not cure your epilepsy but you will feel better.
Good luck to you all.
PS: Doctors did not put me on this treatment, I did it all on my own. The Dr would not give me the primaquine phospate I wanted....He said I didn't need it.
Primaquine Phospate was the main reason I got better + Doxy + transfer factor + Black walnut hull + zapping + The F-Scan 2 + live blood test + a detox program + dental clean up...Thats all I think.
Thanks for the ino.
Kelly
Had a large seizure about 2 weeks ago! ...Dont know why...
I did not follow the plan that I made
(treating myself with Doxy and primoquine to kill parasites, bacteria, mycoplasma and to keep my CFS from coming back)...
I had gone 4 years without any meds and all but forgot how much it sucks.... Now I will have to decide if I will get back on the meds or try the things that I did 4 years ago before I quit taking all of my meds.
One good thing is that my CFS has not come back so I feel pretty good......
One note,
I had been drinking every night for the last year! This might have beed a trigger for the seizure.
I am very happy for you and hope you never have a nother one. BUT you can't play DR. Take your meds. I had brain surgery 6 years ago and they cured my epilepsy, it is gone forever. I still take 1000mg a day of meds just to be careful. I asked my Dr. From the cleveland Clinic if I could stop taking them and he said this. Why would you screw with anything that is working. I will take it for ever.