Epilepsy & Seizures Support Group

Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...

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Brain & Nervous System
/ Epilepsy & Seizures Support Group

My upcoming surgery

deleted_user
deleted_user
I guess I have been in denial, but now reality is setting in. I am having a right temporal lobectomy in a week and a half. I have been very calm, well as calm as I can be. Yesterday I got mad about not having a chair at work.

My husband is so anxious he had to see the doctor for medication. My dog is even vomiting...although probably not related.

I almost started to cry when I apologized to the coworker about my behavior over the chair. I explained I am stressed over the surgery coming up. I haven't cryed yet. I think I haven't really let it sink in how this is major stuff.

I am so grateful for the opportunity and really am looking forward to living a seizure free life on hopefully just one medication.

Thanks for reading.

Gail
deleted_user
deleted_user
My thoughs are with you and hears to hearing your much better after the surgery. Go ahead and cry and let it out, have good pitty party and then find the strength to move forward, its in all of us and I know you can do it. Being mad/anger is a quit normal response, I use it to keep fighting my health problems. Best to you, Dave
deleted_user
deleted_user
Crying is OK, it's normal. I'd be scared, too!
deleted_user
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Have a good cry-the sdtress relief is amazing!!. My husband always knows when I need one and lets me have one! He always asks if there is anything he can do, and he listens when I say no and just lets me cry. This last 6 weeks have been crazy for me too.

Keep us updated as best you can!!
deleted_user
deleted_user
I can only imagine what you are going through being so close to surgery. I am being tested as a possible candidate and at this point I wish I had the go ahead. If I were in your situation I would probably be biting my nails off, too. The best to you, and please keep me updated.
deleted_user
deleted_user
Have you had the opportunity to speak with someone who's gone through this. I had a LTL in July of this year and while I was scared, it has turned out to be a very positive move thus far, touch wood. I was fortunate though that I had the opportunity to meet a couple of guys who had the surgery performed by the same doctor and they answered my questions and basically reassured me. Take the time to feel scared, cry if you need to, but if you have faith in your doctors then you'll do just fine. Best of luck! Lorraine :)
deleted_user
deleted_user
Well good for you. I am really glad to hear that you can have surgery. I had surgery myself 10 months ago. December of 06. IT WAS WONDERFUL!!! I have had no problems what so ever from it and I am so greatful that I decided to have it done. I believe that your attitude and will for it dictates the outcome of how you will do. I hope the best for you. I know things will go well for you. You are going to love it. Your personality will probably change (for the best of course). You won't have to worry about seizures any longer and you will finally be able to breathe the free air again without having to worry about seizures. Like I said though...good luck and god speed.
deleted_user
deleted_user
My thoughts and prayers are with you. I know this is major stuff and you have every right to be scared and angry...Cry all you want and don't feel guilty for it!!! Then, pick up your boot straps and go for it!!! It will all be over soon, and you will be so much better for it. There is a part of me that is actually jealous, as crazy as that is, because my son who has sooooo many seizures is not a candidate for surgery. It really puts you up against a wall.
Keep the faith and God will see you through. You are going to be just fine.
deleted_user
deleted_user
I had surgery in July to remove a tumor that was causing me seizures. The surgery itself does not hurt. I found that my back and neck hurt from being in bed for 4 days. The surgery well worth it!!! You will feel much better!!! But remember the side efffects out weight the risks. I wish you well!!! God Bless You!!
deleted_user
deleted_user
Gail,
Have you looked at the video OF the lobectomy? http://www.or-live.com/tgh/1333/ This is a recording of a live broadcast. Viewers were able to email in questions and have them answered. Several of them were my questions. I think that's probably why I didn't have a whole lof of questions when it came time for my OWN surgery.
Take care, and keep me posted, please?
m
deleted_user
deleted_user
hi, i had a rtl surgery on august of this year and as of to date, i have not had another seizure and it has now been 2 months where as before the surgery i would have 5 a month. like you i was scared about it and i asked so many questions, and got so many answers. which were all positive. i can now say the same. i am very happy with the decisioni made to have surgery. i have no regrets about it at all. i feel as though i can now lead a normal life without the fears of seizures. you will do great, and afterwards i think you too will be happy with the decision that you made. my thoughts and prayers are with you. keep the faith. sincerly, becky

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deleted_user
deleted_user
After the operation even if it fails you, if you get serious problems the the brain will deal with any after effects however tough they are at the time
deleted_user
deleted_user
WELL HAVING 5 SURGERYS I GUESS I WAS CALMER... MY PARENTS WERE WORSE THEN I WAS. MY FIRST SURGERY WAS WHEN I WAS 14--- THEN 16, THEN 3X 2005 AT 26. I HAD TO TELL MY PARENTS TO CALM DOWN BUT I GUESS I CAN SAY THAT I WENT IN THERE WITH THE ATTITUDE OF IT IS OR IT ISN'T AND BE STRONG. GOOD LUCK AND LET ME KNOW HOW IT GOES. LEFT TEMPORAL LOBE HERE!!
deleted_user
deleted_user
Hey Gail well i have a 6 year old boy that has seizures and me and my family have been through alot. We are trying a third different medicine on my son and i think this is going to be our last resort to try and help him. Well i mean medication wise and then we thought about the surgery. You see i am from La Ronge Saskatchewan Canada and my husband and i really wnat to help and anything for our son. The surgery i'm sure will be fine for you and let it out and be free from your fear and anxiety.
Flicka
Flicka
Hi!
How did your surgery go? what kind of epilepsy did you have? how often were your seizures? I am considering surgery so any advice would be great thanks!
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