My daughter (15)was diagnosed in early feb with tonic clonic epilepsy based on what I had told him she was doing & family history (my mum had epilepsy all her life)she was started on lamotragine-this was increased slowly up to 200mg daily. After 4 days on this dose her seizures stopped, a few days later her Dr set up a video EEG she was on it for 3 days-nothing happened, because of this he suggested that it may not be epilepsy & to try lowering her med dosage, this we have done and suprise suprise her seizures have started again. he has said that because of her behaviour during a seizure its probably not epilepsy - when in a seizure she seems to revert back to being a toddler, her speech is different, she is incontinent, she will happily watch baby channels-won't look at real people on tv or in photos, she plays with toys mainly if they're pink, she pulls peoples trousers down & grabs for their groin area and remembers nothing when she comes round yet when she has another seizure she remembers what she did in the last one..I am sure this is epilepsy but its not just clonic tonic. Dr hasn't seen this behaviour with epilepsy so dosen't seem to beleive it to be true. Anyone else behave in this way????
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