Epilepsy & Seizures Support Group

Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...

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/ Epilepsy & Seizures Support Group

I need some advice

deleted_user
deleted_user
Hello everyone I am new to daily strength and I am looking for some advice. My husband has epilepsy he normally has grand-mal seizures, but recently he has been having seizures that are all over his body, trembling,convulsing or mumbling when he is sleeping. His doctor has uped is depekote but this is not helping. he is tired all the time and unable to find any work due to this. We are short on cash I am the only income and it is hard to cover bills with an 8 dollar an hour job. Any Ideas?
deleted_user
deleted_user
I was on Depakote for a long time,it was a ok med, but it caused alot of other health problems. I told my docs to take me off that and put me on Topamax and that did the job for a long time.If your husband is a thin man I don't recommend it. I do always say don't always rely on your doctors. Look up different meds and side effects. Some of those drugs are not worth being on.They have a new drug Keppra its suppose to be good with few side affects I am testing it out now. Good Luck.
deleted_user
deleted_user
What are his granmal usually like? The ones he's having now sound like gran mal too. The docs were thinking of putting me on Depakote for awhile, but it's supposed to have side effects that are bad for younger women to take. Topamax worked decently, and I'm on Keppra now. I hate the side effects, no progress yet. As for money...I've been there. We lost insurance right after my seizures got worse...I'm sorry for the financial troubles. I hope it all works out...
deleted_user
deleted_user
Have you tried to get SSI until the doc can find a dosage that will control what is going on?
Sorry I did not have advice regarding the Epi. situation.
Good Luck,

-Tina
heather1
heather1
have you tried explaining the situatiun to the neuro?? plain and simple...he is the one you need to talk to hon...and he is the best one to work with...there are so many meds out there now...all of the meds will have side effects...but if this med is causing your husband to be so tired all the time..perhaps your neuro can put him on something else that will give him seziure control and not the sleepniess that he is having now??

good luck hon
hugs
heather
deleted_user
deleted_user
Hang in there. I have been on Phenobarbital adn Dilantin for years and have been seizure free. My brother has seizures due to Cerebral Palsy. He take Keppra and seems to be doing okay.

God Bless.
deleted_user
deleted_user
The fatigue is being caused primarily by his seizure activity. Ongoing seizures make not only body tired, but your brain tired. The AED meds do not help this situation.

His nuero needs to be aware of this, and it sounds like maybe a second med needs to be added, rather then just an upping of the dose of his depakote. or potentially a change in med altogether.
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