Keep your chin up my friend. I can't offer much advise, I just recently had a grand mal seizure and then 4 hours later had another one in the hospital. I too, am looking for answers and direction. I don't like the way my body feels this past week. Somethings not right.

The mindset I have is I have seizures/epilepsy, they don't have me. They're a part of me, but they don't define who I am.
It's especially hard when just as you think you got it worked out, BAM! And life is again turned upside down!
Have you talked to your neuro? What do they have to say? How are the medications working? Any good ones out of the bunch?
I would recommend keeping a diary full of all that info, especially about all your medications. And keep yourself informed via the internet of all the specifics on each medication you're taking.

hi, i wish i could go a long time without a seizure. they started 4 yrs ago, since then i havent worked i am on disibility. I mostly have grand mal they last 5-10minutes or more. i was on tegretol in the begining 100mgs twice a day. then tegretol cr 800mg a day then on a mix of that with 2400mg epilim then came of tegretol and went on to 2000mg keppra still no controll. now comming off epilim only 400mgs to go and i have been put on lamictal currently on 200mgs a day. on lamictal i can function. i can go 4 days now with out a seizure. although the seizure pattern has changed and its a little scarey not knowing what tomorrow will bring. i ware a helmet out doors now for my own safety. but all the other drugs i was on made me tired slow and i put on weight also. now i hope with lamictal it will turn my life around as i can now get up and do daily things and not sleep the day away.

I can't offer you advice I'm afraid... Only I know I believed I would never have a seizure ever again, but when I least expected them they came at the scariest point possible - when I was travelling alone, and came round surrounded by Spanish speaking nurses (my spanish is poor). Now it feels like I too have to label myself and construct my life around it. Although I'm lucky not to have a low threshold it has completely changed my life. But I'm sure in time I'll get used to the medication and life will become more structured again.

Hi i take tegretol 1200mg day...topamax 200mg day and frissum 15mg day...with ativian to disolve under tounge when needed for cluster seziures...
The way my epilepsly neuro explained it when he switched my meds around yet again...sigh... is that the body becomes accomsted to the meds and therefore the seziure threshhold lowers ..the meds become less effective....
you may need to switch meds.. try a new combination..or just switch the levels of the meds you are already on....

And SallyRae has said it well,,, keep a diary of all info...it could prove important,,, i know that i found when my seziures increased again it was mainly in the evening...so when the med change came we switched the topamax for frissium in the evening...everything is going great for now...but apparently this med has a honeymoon affect..so it is a cross the fingers and wait...grin..

I don't let my seizures take over my life because I come first.I've had times I've had so many sz's I wouldn't leave my house at times because my hubby ask me not to.
Now I wear a helment on my walks so if I go down I don't injure my head.
I've had stitches and staples just to many times in my life.
I accepted my Epilepsy as a teen but I still dont like hurting myself.

I can't give you any advise but just say I'm here for you and know what you mean. This is a very blue day for me. We have been trying to get me under control for a year now and it's just now working 3 seizures this week where lately they have been about 6 weeks apart. I don't know what you do for working, but I am veru fortunate in that are and I am able to go into the office twice a week and work from home the others and on 24 hour call. My mother drives me and my son-in-law picks me up because I can't drive. I've been at this place for 20 years and it's a Fortune 100 company so we are hign in technology. Therefore we are able to pull this off. A lot of companies are not eliminating the need to go into the office at all. Is there are way to get into a company like that? Like I said, I don't know what you do. Katie