
Epilepsy & Seizures Support Group
Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...
How do you not let them take over your life?

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It is so hard for me to get my life back. That is the best way to say it. I feel like since my seizures have come back and with such frequency I don't know how to pick up the pieces. The hardest part was about 5 years ago they were very well controlled I had 2 in a 3 1/2 year period. This I told myself I can handle. Then I started having them weekly and have been on all sorts of medicine. I just can't seem to get my bearings. I feel lost in what use to be life.
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It's especially hard when just as you think you got it worked out, BAM! And life is again turned upside down!
Have you talked to your neuro? What do they have to say? How are the medications working? Any good ones out of the bunch?
I would recommend keeping a diary full of all that info, especially about all your medications. And keep yourself informed via the internet of all the specifics on each medication you're taking.
The way my epilepsly neuro explained it when he switched my meds around yet again...sigh... is that the body becomes accomsted to the meds and therefore the seziure threshhold lowers ..the meds become less effective....
you may need to switch meds.. try a new combination..or just switch the levels of the meds you are already on....
And SallyRae has said it well,,, keep a diary of all info...it could prove important,,, i know that i found when my seziures increased again it was mainly in the evening...so when the med change came we switched the topamax for frissium in the evening...everything is going great for now...but apparently this med has a honeymoon affect..so it is a cross the fingers and wait...grin..
Now I wear a helment on my walks so if I go down I don't injure my head.
I've had stitches and staples just to many times in my life.
I accepted my Epilepsy as a teen but I still dont like hurting myself.