I had seizures growing up but.... went undiagnosed! They were simple partial seizures(nothing simple about them but I did not name them)My first grandmal seizures brought on the diagnosis and have continued to worsen.I am now 32 years old and do not have panic disorder and so many of the other things that I have been diagnosed with but have epilepsy. From the many misdiagnosis I still sometimes feel like I have been misdiagnosed with my seizures until my boyfriend witnesses the grandmals.Well I had 2 last weds. night and since then the partial seizures have been constant.I do not even feel like myself. It makes me feel icky and there is no other word to describe it.I am looking to find someone that has away with words to describe how they feel with partial seizures.I know when I am asked I have A very difficult time explaining. Alot of the difficulty comes from lack of understanding from others and fear of people not believing me. This is a huge mental strain and just looking for a seizurific friend. As much as I love my family and friends, someone who wont say "did you call the dr.?" "did you take your meds?" you know the things that are important when you feel like you are stable minded to deal with. Now all I feel up to is being alone as I need re-couping time only to never know when it will return!! I just want to find someone to chat with Thanks wendy lou
Posts You May Be Interested In
Hi all! This is for those of you that have or have had the same neurologist for 4 years or more. I have been with mine now since 2009. He is one of the best movement disorder secialists in the midwest. I know he is extremely busy on the lecture circuit now and in fact not taking new patients there is a huge waiting list for him. BUT.... I feel like my visits are not what they use to be. He...
I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...