
Epilepsy & Seizures Support Group
Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...

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I don't exactly have seizures but I can't find anything that really matches. I was misdiagnosed for depression when I was 14 and put on Zoloft, which gave me a tic disorder. I'm 20 now, correctly diagnosed with bipolar and on Lamictal. I know there were many lawsuits against pFizer for the effects on teenagers... but I'm not sure if their symptoms were the same as mine... and I was hoping I could find someone to talk to.
I have the regular twitches/stuttering/repetitive motions when I get anxious but when I'm very stressed I have what looks like a seizure. The doctors I go to say it isn't technically a seizure, though. They say it's a complex motor tic. When I have this complex motor tic, I'm conscious. I'm not in danger of hurting myself but I can't control my body... if that makes any sense. It's really scary and all I can do is wait it out... but I do feel a lot better when it's over. A physical manifestation of my stress, but it still really looks like a seizure.
If there's anyone that has a similar experience, or any advice or anything, you can post here or IM me on AIM, too.
AIM: ameneope
Thanks
I have the regular twitches/stuttering/repetitive motions when I get anxious but when I'm very stressed I have what looks like a seizure. The doctors I go to say it isn't technically a seizure, though. They say it's a complex motor tic. When I have this complex motor tic, I'm conscious. I'm not in danger of hurting myself but I can't control my body... if that makes any sense. It's really scary and all I can do is wait it out... but I do feel a lot better when it's over. A physical manifestation of my stress, but it still really looks like a seizure.
If there's anyone that has a similar experience, or any advice or anything, you can post here or IM me on AIM, too.
AIM: ameneope
Thanks
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It is possible that the same thing may have happened to someone there. If it happened to you it had to have happened to others too.
Are the docs treating you somehow? diagnosed how? with what exactly? Did you go for a follow up to get some more answers....I strongly suggest you do that. Good luck.
i have small seizures, only a few recently, where i am totally awake and concsious, and i get a very sick feeling(auora) and i have no control over my movements...but I am awake or aware/concious.
Do you feel sick before hand, or have a distinct smell/ see lights?
again...this is just similar.
I think seizures are so individual, even though they are put in a broard classification, they vary with each person and each episode.
From what I understand about seizures themselves, they can be caused from so many different things even when they are not from Epilepsy. Maybe when all is said and done, she will eventually be diagnosed as Epileptic...maybe something else or maybe both things.
It's very common for the process of diagnoses to take years and for the docs to diagnose as one condition and it turn out to be something else.
They really only have symptoms to go on usually. I'd like to suggest that you and your fiancee both...make a list of symptoms as they occur, each and every time she has an episode. Both from your view as an on looker and from her view as the one having it. Her initial feelings before and after....and your initial view of things. This can have a real effect on the docs diagnoses and how they treat the symptoms. (and take this list with you to the doc.)
I'm glad that you did make similar posts in other communities, I'd be interested to hear any update you may get on this....it could surely help others as well. Best of luck.
Thank you both for your replies so far - it's done her the world of good just to know that she's not alone, it really has.
That happens to me sometimes but not always. Definately add that to your list on paper. Make sure you record the time of day, what she was doing at the time, what you SAW, how exactly she felt.
Each and everytime a symptom happens, write it down even if it's a repeat of something that happened the day before or whenever. (along with time of day, what she was doing etc...)
If I had done all these things early on when my seizures started, it wouldn't have taken years for a diagnoses for me. It took me a while but I eventually learned. lol
These will all be clues to help in a better diagnoses. Make sure you take your lists with you to the Doc.
Just as an after thought....what I do is make a couple copies of my lists. I give 1 to my Family doc.... 1 to my Neuroligist....and 1 for me.
I'm a bit of a details type person though. Things like this are one of my ways to make me feel like I have some control on things and I like having a record to remember what I've told the docs. I just copy them on my scanner/printer/copier from home. (just a thought.) Once I started concentrating on small things like keeping notes on all this, I started to feel a bit like my whole world was falling apart and me too. I just knew that somehow I had to get back on that horse!....I needed to get back to living.