Epilepsy & Seizures Support Group
Epilepsy (often referred to as a seizure disorder) is a chronic neurological condition characterized by recurrent unprovoked seizures. It is commonly controlled with medication, although surgical methods are used as well. Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal...
When I got around the age of 12 I started having these things, what I refer to as "tremors." I can only describe them as being like internalized shivers. I'm completely conscious during them, but they can interrupt my thoughts sometimes. My heart races during them. They only last a couple of seconds, but I can have many of them in one setting. It had something to do with light--I found that I couldn't close my eyes for long periods of time without having one. It was hell trying to go to sleep...I'd just have to lay there keeping my eyes shut, experiencing tremors, until they subsided and I could doze off.
For four years I had tremors and never mentioned them to anyone. I started getting them around the time of my parents' divorce and, because I always experienced a rapid heartbeat, I thought they were a form of anxiety attack that I had developed in response. That was until 2001, when I had a full blown grand mal one morning in front of my Mum.
The doctors gave me a CT, MRI, and EEG--of course, determining nothing. I was placed on Dilantin because my EEG showed a "seizuric tendency." I switched neuros and got onto Lamictal, which I think is much safer than Dilantin. I have had two grand mals since then--once I was alone, the other I had in my sleep next to my boyfriend. I still have tremors, periodically and almost always in the morning.
I was just wondering if anyone had experienced anything like my tremors. The doc doesn't know what to call them, so he just labels me as partial-complex, but that description doesn't fit. I just wish I could relate to someone on this.
For four years I had tremors and never mentioned them to anyone. I started getting them around the time of my parents' divorce and, because I always experienced a rapid heartbeat, I thought they were a form of anxiety attack that I had developed in response. That was until 2001, when I had a full blown grand mal one morning in front of my Mum.
The doctors gave me a CT, MRI, and EEG--of course, determining nothing. I was placed on Dilantin because my EEG showed a "seizuric tendency." I switched neuros and got onto Lamictal, which I think is much safer than Dilantin. I have had two grand mals since then--once I was alone, the other I had in my sleep next to my boyfriend. I still have tremors, periodically and almost always in the morning.
I was just wondering if anyone had experienced anything like my tremors. The doc doesn't know what to call them, so he just labels me as partial-complex, but that description doesn't fit. I just wish I could relate to someone on this.
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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Has anyone tried these supplements? Do they give MGers more quality of life by improving memory and overall well being?Thanks!Barbel
I get something that I can only describe as "brain shivers". It, obviously, happens in my head and can have many per day. I also get rapid heart beats or heart palps, sometimes during these and other seizures and sometimes just because. My doctor said these "brain shivers" of mine were related to myclonus...I get jerks in my fingers and limbs mostly when I'm tired but sometimes at any time regardless. I'm not sure he really knew what to call mine either...
What you have called 'tremors', I always called 'black outs' because when being awake again was with paramedics along with being in an ambulance numerous times. They then did the diagnosis with CT, MRI, and EEGs. The neurologists wanted to do brain surgery but after two times with monitoring and promoting the seizures by taking me off medications, they said to have the VNS implant. This was already done in June 2004 (so that doctor was fired, he was awful). Up until recently, saw the neurologist that arranged the implant but she relocated. So have gone with the same practice after trying a doctor that was close. They were young and not familiar with VNS implants; went back to the same neurologists after making a few calls to doctors and asked for their recommendations. Went back to where I was at since the Spring of 2004...the whole thing happened because of a horsing accident in 1986. There weren't problems for a period of time after the coma from the accident. Things have built up and sorry that you have needed to deal with the complications since you were so young. Guess I was in my early twenties and have needed to work with the complications for over twenty years. Good luck and Happy Holidays!
Best regards,
Beth