Hello, my 17 yr old son suffers from COmplex partial seizures. He get them 2 - 3 x per day and will always get one after eating starchy or heavy foods, esp white flour, bread, pasta, white rice, etc. He loses his language during them, and then passes out afterwards, I AM SO FRUSTRATED, NO ONE IS HELPING ME. The doc wants me to leave his practice bc the seizures are long in duration and he is a fugue (He goes away) I am looking for a new doctor, but every time I go to a new one they say insensitive things to me like "Is he mentally retarded?" or "His learning disabilities will never get better"...I leave their offices crying. I am so depressed and so tired of my son acting "crazy", having no friends and having such a poor quality of life. I wish I could change things, and feel so impotent. NOw they want to lower the trileptal and the dilantin and start him on Lamictal, but I am afraid, and I wish he would get better. If anyone has any helpful feedback and/or knows of any support groups in the Washington DC area, please let me know. Thank you.
Posts You May Be Interested In
I was diagnosed with Epilepsy when I was 10. I am currently 20 years old am at a point in my life where I am starting to lose hope on having my seizures controlled because throughout my life I have tried multiple medications but the ones that worked my body used to and then would stop. The longest Ive been free of them was only 5 months. Im trying to find something in my life truly worth living...
I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????