I dont know...

there are a few women on on here I can think of that will have good advice for you...they are usually around later in the evening...

My goodness this may be the first time I havn't had an opinion to share....

Hugs for you

I am also worried about taking so many pain pills. Any advice? E

bump... lets see if anyone else knows...

I am so sorry. My heart goes out to you. Many hugs to u!

I have heard this from many women where the Endo is still painful after a full hysterectomy. There is several reasons for this, one being that it is a possibility not all Endo was removed in the surery as you could have it your organs near by such as bladder and bowel. Were these areas checked during surgery? another reason is if you have scar tissue and adhesions from the Endo again a full hysterectomy would not of been the answer. I have spoken to some women on here who have experienced the same as you so please don't feel on your own. This should of all been explained to you before the surgery had taken place so that you could make the decission whether or not you wanted to give it a go. it does sound like you need more surgery to check if the Endo is in the surrounding areas. Are you on HRT yet? As this will also help the Endo. I am really sorry to hear a hysterectomy did not work for you, it must be awful. But I have to say it is still early days once they check you over then I am sure you will be well on the way to the road of recovery.

Kirsty

Girl, Don't worry. I had celular changes in some tumors I had removed in '99. They were benign, but I know how scarey it can be. I have a couple of new growths growing that I need removed that are outside my abdomen wall (bleeding through c-section scar). It isn't fun, hang in there. The good news is they are usually benign.

I forgot to mention I had a hysterectomy 2 months ago. Any residual Endo that is in there is always going to be in there. Don't listen to the docs. I am going through this right now. Sucks...

I had 2 months pain free before it came back. I had put off having another surgery because my dad and grandma have major problems with adhesions. I don't want to keep having multiple surgeries, but I'm to the point where I have to. Right now I'm just trying to treat the pain with things other than pain pills. I don't really have any advise to give you. I'm currently having troubles finding a dr that's willing to help me because of the "mess" they will find when I do have another surgery. I just want you to know you aren't alone.

The new doctor is great - I had an infection where the cervical cuff biopsy was - so we first must treat that. Then he sad that the (pardon my spelling) uteralsacrel ligaments must come out - as they are also bad. I go to the doctor again tomorrow. He did hormone level checks. I am not on any HRT as even without estrogen my endo grows (from the stuff stored in my fat). He also said something about a little left over ovary. Will keep you posted. Elizabeth

Hi Elizabeth
I am so sorry to hear about your struggle! You said you were worried about taking so much pain meds. I was too, as it's the only way I am treating my endo right now. I was really worried about becoming addicted to them because when I take them they make me feel SOOOO much better. I try to only use them when I have to...when I can't function otherwise. Just be very aware of how much you are taking...I mean you have to be able to function, right?!
Hang in there!! Hugs to you!
Christine

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