Hello. I don't have any bowel issues with my endo however this time around I am getting really bad lower back pain. I have been getting massages which really helps with the pain. I also get excruiating pain in my lower abdomen. I notice that depending on how bad my abdomen hurts relates to when and how bad my back hurts. Depending on where your endo is in your abdomen you can get pain anywhere related to it. I also find that when my bladder is full my pain gets worse. Hope that helps.

Yes you can have endo almost anywhere,i have it in the lungs,it's very rare but it happens.

I have had the bad stomach pains, seems to be worse when I am under stress. Almost like you need to throw up or your stomach is being eaten by acid. Like I said this seems to come and go with stress and I don't have an ulcer, so I am assuming it is related to the endo.

I have the back pain as well, this is definitely worse before my period, but I ave found that I have it periodically throughout the month as well.

As for the pain in the side I actually have it about 3 inches to the left of my right hip, they originally though it was my appendix, but when they did the lap they said they didn't see anything. This is actually where I usually have the worse pain, so I am wondering if there isn't some hidden endo there that they just didn't see. (they found it everwhere but there which I thought was odd since that is where I hurt the most).

This is getting to be a long list of complaints, but basically I think you can get the endo anywhere, and I think the back pain especially is really common. I also have a lot of bowel issues and I see a gastrointestinal dr. as well in conjunction with my gyno, they happen to be friends so they seem to work well together.

I only get symptoms during AF but here they are:
I cramp from my stomach to my lower abdomen and it gets worse when I eat and I have dull achey lower back pain. I sometimes experience the stich in the side pain too but it's a sharp pain for me. I also get extremely painful gas. And it's difficult for me to stand up straight and walk. And it hurts to pee to the point that I get dizzy and nauseated on the toilet and think I may pass out and/or throw up. Endo sucks.

Yes, I have endo with bowel issues- I take progesterone which helps but it is still really painful during my cycle. I take a lot of advil, and use hotpacks when I can, otherwise I just grit my teeth and get through it. The pain in the lower back and side are definitely there, as well as low abdomen pain, very severe...you are not alone..

I get every single symptom you spoke of, so don't worry your not on your own. In my 2nd lap it was discovered that i had Endo in the pouch of douglas a small area of the bowel, I had this removed via laser surgery but my problems have just got worse since. I have constipation all the time and seeming as i am a vegetarian and eat lots of fruit ad veg I don't understand why. i find opeing my bowels extremely painful and can be rolling about on the floor after the opening of my bowels has taken place. my 3rd lap is in Dec and they are going to look more into the bowel as well as bladder as i also have problems in that area too. If they find more Endo in the bowel there is nothing they can do surgically as it is too dangerous because of the risk of perforating the bowel and then bleeding to death. So I have no idea what they will do if it is discovered in this area. You haven't really stated what problems you get with your bowel whether you get constipation or diareah. As for the stitch that is almost a certainty it is Endo related. sorry I don't think I have helped much but i can sympathise as I have th same awful symptoms.

Kirsty and the rest of you.. i had an ancestor many yrs ago who did die' of a perforated bowel or twisted bowel.. how twisted? dont know.. i get terrible pain like you all have described and there are about seven different 'looks' or descriptions to the pain i get.. CHECK TO MAKE SURE IT IS NOT DIVERTICULOSIS! I had that and god it is torturous.. the pain is constant and in the lower left side, not right! and it is constant spasms, i couldnt walk straight, but bent over.. god why do we humans have to suffer such things? Anyone with side pain, make sure doctor rules out diverticulosis and eat fiber every day! (celery, bran, oatmeal, etc.)

Andy,

I have all of the above. You can get endo just just about everywhere but most cases are rare. Mine was all over my bladder, intestines, bowels and the pouch of douglas (kinda behind your cervix)Don't feel like you are alone, I know what you are dealing with...it is very painfull!

I recommend anyone suffering from Endo related Bowel symptoms to read this article:
http://www.centerforendo.com/articles/bowel.htm

I just had excision surgery by the author, Dr. Sinervo at the CEC. He excised Endo on my bowel which I hope once I heal will help my symptoms. Good luck!

I AM IN PAIN CONSTANTLY STOMACH, LOWER BACK, RIBS, HIPS, LEGS SOMETIMES I AM UNABLE TO WALK, I ALSO HAVE ADENOMYSIS ON TOP OF ENDO. I HAVE ENDO IN THE BOWEL, BLADDER, UTERUS, OVARY (AS ONLY HAVE 1 NOW), POUCH OF DOUGLAS AND EVERYWHERE ELSE. MY PAIN IS CHRONIC AND THERE SEEMS FOR ME TO BE NO ANSWERS AT THE MOMENT ANY WAY. GOOD LUCK

Hi! I definitely think that the pain can be any where. I had severe pain around my belly button that was "cured" with Sulfazine. this is a medicine specific to reducing the inflammation in the intestines. Also, I am having a laparoscopy at the end of october to fix a fragmented round ligament. The symptoms of this is pain in lower right side...way down low. It's pretty constant. I also get some pain in my lower back. The round ligament holds a lot of organs in place and can get damaged after the uterus is removed. I had my uterus removed over two years ago. Pain down low can also be due to prolapsed organs. This happens as we age and also can happen with multiple belly surgeries. I've had several laparoscopies for endo... Not sure that anything has prolapsed...but that could be why I have so much constant pain and a very heavy feeling down low. Like something is pressing on my pelvic bone.

Hello all, I realize that this post is almost a year old, but Is your pain on the left or right? If it is on the right, high up, going to your back, it may be your gull bladder. Just a thought.

I had left side pain and during a lap. my left fallopian tube had adhered to my pelvic wall. My left side pain was gone after that.