We must have the same timeline. I had surgery three weeks ago and got my first Lupron shot a week ago. So far I haven't noticed too much. I am getting a bit of a sharp pain on my right side, but it may be because a very large cyst was removed from that ovary. I'm hoping people respond to this as I am not finding many good stories about this drug. No hot flashes or mood swings like I was told - at least not yet. How long are doing this therapy? I'm only doing it for three months.

Thanks for the response. I am having sharp pains too (in addition to the lower left side pain). My sharp pains are right under my left breast. Its really annoying and I thought something was digging into me at first, but it continues daily.

My dr told me I should be on the shot for 6 months to a year, but I have read that no one advises being on it for more than 6 months at a time. I don't know why he would have suggested that.

I had hot flashes the first three days, but now I have more cold chills. Its weird. The pain is severe and it is hard to function.

I just got my 3rd 3month dose last week, so I've been on it for 6 months now. I am also taking a small dose of progesteron, which they call the add back pill. It has worked absolutly great for me. I went from missing a lot of days on class, so being practically pain free. I think it may take some time for the Lupron to fully get into your system and start working, so the pain you have now may just be regular endo pain and not fro the Lupron. For me nothing "got worse before it got better". I've had pretty much no side effects either, only one hot flash over this whole time. I can say nothing but good things about Lupron, and I'm kinda scared to stop taking it in 6 months because I'm assuming my pain will come back. I know it is scary with all of the negative feed back from a lot of people, and i was hesitant to start it also, but it really has worked great for me. I had a laporoscapy in March, and was in pain 6 wks later, so thats when I started Lupron. Hope this helps, and good luck with your treatment!! Let me know if you have any other questions about my experience on Lupron.
-Cathy

I was afraid to try the lupron so took the provera instead. It turned my cycles off which was great, I did however have menopausal symptoms.... not so fun

I am pretty much right in line with cwp. My pain did get worse during the first month, and then dropped off. I am scheduled to be on the Lupron for 9-12 months. In order to do this, my doc also gave me a Progesterone add-back, which reduces bone loss (the reason you're supposed to be on it less than 6 months if you're not taking an add back). I had constant hot flashes without the Progesterone, however they have disappeared now that I'm on it. From my experience, your pain may be gone/decreased within a few weeks. I wish you all the luck!

Thank you. It is really good to hear some positive feedback. Almost everywhere online there is so much negative regarding Lupron.

I need to find a new dr though...he doesn't seem to give me all the facts and he told me to stop "crying on my mother's shoulder" and to "get out of the house more."

I asked about "add-back" and he said only if I need it. I am a little put off by that because another concern of mine is the bone loss.

Thanks for all the help!

I also had two laporoscopies, and I know the pain can be debilitating. I am so sorry! I know how hard it is. I receieved Depot Lupron shots for six months and seems to have helped more than anything else. I went through years of severe pain, and being treated like a drug seaker. The shots did cause menopausal symptoms which are not fun. I believe that my estrogen levels are still not leveled off (I still have hot flashes), but I know that I can go in and have them checked. Another thing you might consider if you still are suffering in pain (as I am). Is to look into joining a pain program. I just started one, and it's very intensive, but they have a very mind/body approach to dealing with chronic pain. My heart goes out to you!

Lauren, I would deffinatly look for another doctor If I was you. My doctor just told me I would also take add-back, i didn't have to ask for it. I think the add -back is really for the users safety, it reduces side effect such as hot flashes and bone loss. Why should you have to suffer with more side effects when the add back could significantly help. Your doctor also doesn't understand the emotinoal distress one can go through when dealling with endo and going on such an extreme drug such as Lupron. I think we all get more emotinal just knowing we have endo and dealing with that. I told my dr. that I was a little depressed since being on Lupron(It's really minor, i just feel a little glum sometimes) and they were very concerned and asked if I wanted to seek treatment for that. Not to be sexist but I don't know if a women doctor may be more sympathetic to what your going through, but of course that may not always be the case. I wish you the best of luck and hope you start feeling better soon and that you find a good doctor.

-Cathy

Yes the pain is debilitating. I would not wish this pain on my worst enemy. I have had 3 laparoscopies, and tried Zoladex injections twice. Each session was for three month duration. Zoladex injections are similar to Lupron injections. I had continued to have cramping, even though I am not menstruating. The pain in my back feels like it has been cut open and alcohol poured on it.
I have to be honest with you, the pain is the same, and I just don't bleed anymore. I suffer from hot flashes and night sweats, for this I am taking Norethindrone twice daily. I pray the injections work for you. The injections helped the first time. When I stopped having them my endometriosis came back with a vengeance and a cyst to top it off! This is my second round with the injections; my hysterectomy is scheduled for December 2007. Good Luck, once again I hope it works for you.

I was on Lupron for 6 months and just had my final shot about 6 weeks ago. I never had any pain, however I dealt with the menopause symptoms and insomnia. I did have a procedure prior to my last Lupron shot and the therapy was successful, all of my endo has cleared up. I hope the same for you.

I had a lap/d&c in august and started lupron in sept. I have had 2 shots so far and I will get my 3rd in about week. The lupron has really helped my pelvic pain. I really feel like a new person. From my experience the s/e had not been at all. I have had a few hot flashes and a couple of night sweats. My biggest compliant would be cold chills which may not even be related to lupron.

I was given a 3 month injection of lupron, and while I had no physical pain or periods, I had hot flashes, permanent memory loss, severe depression and thoughts of suicide. I lost my job. It took me much longer than three months to get that crap out of my system. Depending on what side effects you have, you may need different supportive therapies. Check out books from the Endometriosis Association forhelp with this. Their info and support is very comprehensive. I started having injections of progesterone (pregnenalone) IM every other day, plus used progesterone cream - about 5 months after the lupron. It made a huge difference. I couldn't get my job back... but I got ME and a new life.