
Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

deleted_user
I was really hoping when I woke up today, that it would be a better day. I really felt the need to get up and go to church today. I try to go every Sunday, because in some way it helps me to get my strength and hope back up for the week. Anyway, today, I barely made it. I was in so much pain the whole time. I was getting shooting pains that was causing me to double over, I was trying SO hard not to cry out. I tried standing so that I could sing, and praise and worship, but the longer I stood, the more I felt like I was going to throw up from the pain. I had to run to the restroom to vomit, but made it back to my seat. My husband wanted to go eat afterwards. We went to Schelosky's, I ate a couple of bites of my sandwich and got sick. I am hurting so unbelievably bad. What do I do? i really hate to go to the hospital, but I'm starting to think that I have no choice. I mean, they could help me manage my pain, and hopefully help me find a new doctor to help me. What do you guys think I should do. I really need to take care of this or manage this pain, cause I have to work tommorrow.

deleted_user
Have you had a laparoscopy to help manage the endo? You sound like you are in horrible pain, are you seeing someone for treatment?

deleted_user
Sorry, just read your bio and see that you have had surgery. Have they tried Lupron? I have always had terrible periods, with endo suspected, but was on the Depo-Provera shot for a long time. When they took me off of it because it was black-listed, I tried sooo many different kinds of pills. Most were awful, and for a while I actually thought I had cancer and was going to die. I had a PET scan which showed inflammation everyhwere, but that was it. So I just quite all of the pills. Bad idea because I was off for 6months when I started vomiting from pain and when I ovulated it was like I had been beaten up in the stomach. So they found a cyst, and I just had a lap which confirmed endo and a cyst in my fallopian tube. However, I started on the Depo again (Thank GOD) about two weeks before my surgery. The pain of the cyst didnt stop (because it was stretching my tube out) but I had NO ovulation pain, because I didnt ovulate, but still it was soooo much better than the pill. I will stay on the shot for now until baby time, and hopefully that will help with the endo. Anyway, alot of typing, I just wanted to tell you my story. Someone needs to help you figure out what works for your body. Do you have a good doc you can trust? I am finally seeing a good GYN who knows about this stuff. Also, pain should never be so bad that you puke, you need to see someone. When was the last time you had an US to look for cysts?

deleted_user
I had a laparoscopy in Dec. but my endo has spread more and I haven't had another surgery. My dr just dropped me as a patient, said he didnt think he could help me.

deleted_user
Was it a GYN? Maybe you should try a woman?

deleted_user
I can't take birth control anymore because I have bad reactions, and will not take lupron. I had an ultra sound a month ago which showed that I had two cysts on my ovaries. I was supposed to have surgery to remove them, then my dr stopped treating me and told me he cant help me.

deleted_user
It was an obgyn, and no it was a man. Go figure, men dont understand the pain.

deleted_user
It could be a burst cyst - you might need to go to the ER if it worsens.

deleted_user
You need to c an endo specialist. that endo left on your bladder can cause some horrible pain it did me.

deleted_user
I hope you feel better. Well just know if no one understands your pain we all do hear. Maybe you need to search the website for a endo specialist in your state/area. The endo specialist that I am seeing has taken immediate action to control my endo. I never had to vomit but my pain has been so bad I counld'nt even walk. My Doc put me on Danazol and My body has responded well to it. He also wants to examine me every month to see how well the endo is shrinking. I can honestly say No pain thats for sure. But everyone is different when it comes down to certain treatments. Find a new Doc so he can monitor you and get this pain under control. Find a Doc who cares. Until then let me no if theres anything we can do for you. Stay strong and positive:-)

deleted_user
you really need to go and see someone like now!! You don't want it to get worse and since you are in severe pain, I think you should be looked at...take care

deleted_user
I hope you feel better. I've dealt with cysts since I was 17 years old. Lost an ovary because of them.

honor435
femara is being used to shrink endo, I didnt try it, but some women have had great success, find a good endo doc.

deleted_user
please go to the ER sweetie. They can give you pain meds, and check to see why you're hurting. Also, have them refer you to another ob/gyn while you're there...
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