
Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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I had my lapo sugery friday and it was suppose to b to remove a cyst on my left ovary. When i woke up and the dr came in he tld me and my parents that i had endo and that i wld need expensive meds to treat it. Well today reality set in after reading about endo on webmd.com and im scared. I have plans to go to college in april but im in pain most of the time and stay at home where i feel safe. i have no clue wat is to come as far as treatment and living with this stuff. All i know is that im scared hurting and tired all the time. I went from healthy to sick in a blink of an eye.
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I'm not sure what the doc means by expensive meds. The doc put me on birth contol to help w/ the endo. I'm now 40 and have had endo. since my young 20's. I'm not saying it hasn't been a pain and I've been through an awful lot w/ my health and female problems but I was able to go to college, became a teacher, and even got married and was able to have 2 children. My gyno told me I couldn't get pregnant b/c of the endo. and was going to put me on fertility pills. I even went & filled the RX -- and I was already pregnant! So, please don't think your life is over b/c you have endo. I understand your feelings but I would hate to see you not go to college b/c of the endo. I'm not trying to tell you what to do - just trying to encourage you. I hope this help a little. Take care,k. ~hugs~
I went back to the doctor who said I had UTI and asked him to check me for endometriosis. After several ultrasounds and a laparoscopy, they diagnsoed me with this annoying disease. That was 10 years ago, but I believe I had this disease for at least 16 years. Now I am 35 years old. I have a husband, and 2 beautiful kids (4 year old twins), I have two degrees from two different colleges. I live with pain every day, but I realised one thing: the minute I let my pain think that it owns me...it actually does. Remember this: your body is not you, it is yours. You need to take control of it and make the best out of this situation. Be positive!
Just remember one thing, Mickey! Do not let anyone decide what works for you and what doesn't. Do not just go to a gynecologist, but find a doctor who specializes in endometriosis. I have been through every doctor,hormone, and surgery that was available, and I even had my kids through surgery. At one point I was told I would never have kids, until I found one doctor who thought positively and decided to make the impossible into a possibility.
Do your research, go to several specialists and make sure you find one you feel you can trust. Don't always go with everything that doctors tell you. Ask around, reasearch, get a second and third opinion. I know you are in a lot of pain right now and things don't look that great to you, but you will slowly find ways to deal with it and not let it control your life. I promise you that much. If you need any moral support, we are always here for you.
P.S. Even though six months ago I was told to have hysterectomy and Lupron, I refused and I am still med free. I go to acupuncture, yoga, walking, no smoking or coffe (which was my favorite social activity with the girls).
Check out Fibrovan on the internet. I took it for three months now, and feel better. I have a follow up appointment in two weeks,and can't wait to see if Fibrovan made any difference.
Good luck and don't stress too much. It's not the end of the world even though the illness is called endo. It's just to scare us :). My best wishes to you.
take care i will check on u soon.
I am sorry to hear that you found out so suddenly and that you are feeling scared. I think it is normal to feel scared, I sometimes feel very scared and miss my old life, but the trick is to keep on top of it and take control, find out as much information as you can and get into the natural therapies and accupuncture for the pain relief. I find that it works really well.
Keep those plans for college. There is no reason why you cannot still achieve your dreams. Now I am in Australia and so I am assuming that you are in the US so I am not sure if it is the same there, but in Australia there are anti-discrimination laws that say employers or education providers cannot discriminate against people with a disability. Endometriosis is considered a disability here as it is a chronic medical condition. This mean that at Uni's here there is additional support available for peole with endo. At my University there is a 'disability liaison officer' and a disability fund that can help with modifications that you might require. You should be able to have special consideration such as extra time during exams or flexibility with deadlines for assignments as well as flexibility or modifications required for any field work. Of if you need to miss classes for a week or something if the pain is really bad then there should be arrangements made such as they will record the lecture for you and send it to you etc. You should also be able to get help with library resources ie. if you cannot go into the campus because of pain they could post you the papers or books you might need. And if you are on campus then they might provide a rest room for if you need to lie down during the day or something. Anyway, this is the kind of thing that is available in Australia at most Universities and supposed to be the same for most work places as they cannot discriminate. I hope that this is the same in the US and if it is then you could look into it and find out what kind of help might be available for you. You shouldn't have to suffer or change all your life plans because of this.
goodluck,
feel free to message me whenever you like!
Cheers, M