Here is a hug! I am so sorry. I don't want to believe there is not help in sight once you have had hysterectomy. My surgery is scheduled for December. I am 35 years old; I have been told I require a full hysterectomy. I will tell you this...My doctor told me that both of my ovaries needed to be removed, because the ovaries make the hormones which cause endometriosis.

My doctor added, if an ovary or part of an ovary remained inside, I would be in the same pain/condition within 1 year of having the hysterectomy. Maybe you should get a second opinion. I know it is difficult to change doctors once you have a rapport built with one. However, a doctor telling you to just deal with it, is not acceptable. You have to be an advocate for your health, or no one will. GET strong and demand the attention that your health care deserves. Hugs & Kisses!!!! Keep your head up.

I don't want to scare anyone but think you folks should hear this one.

My aunt has a long history with endo. She had a hyst. It didn't help her. The endo was everywhere. and to make matters worse they did not sew her up properly and her insides fell into the place where her uterus had been.

Please get a second or third opinion.

If the endo is already in your other parts a hysto may not be the answer.

I will not get one because of my aunts experience, as well I have it in my kidneys and bowels... so there is no point as far as I understand....

I wish you all the best and will talk to God reminding him to take care of you

Please consult with another doctor. Your doctor's advice to live with the pain is unexceptable and there are procedures that can be done to resolve the pain from adhesions. Hugs :-)

Because of you exact situation I have put off the big "H"...I wish I could tell you something more, something helpful or inspiring...all I can say is nothing is more important than you. Take care of yourself. You dont have to live with pain, there are different options to try like accupuncture, bio-feedback and medication (which is what I do, not thrilled and doesnt help 100% but it does ease the pain sometimes). I'm here if you need an "ear" or talk. Good luck to you!

I am so sorry you are still in so much pain. Sounds like you might need a new doctor!!

For those of us who haven't had a hysto, I am learning more and more that HYSTERECTOMIES DO NOT HELP ENDO the majority of the time! I am reading "Hysterectomy Hoax" and I think we all should read it! We have other organs in our bodies, besides our ovaries, that produce estrogen so even after a hysto, if there is the tiniest adhesion left, there's still going to be pain. Maybe not as much as before the hysto, but maybe so too.

I will not get a hysto, there seems to be more negative than positive effects!

Again, I am so sorry you are still in pain - I will include you in my prayers!

Hi all! I am writing to inform you of an NIH Sponsored Endometriosis Treatment Study that we are currently conducting. If you have active endometriosis diagnosed by surgery with menstrual cramps (period pain) you may be eligible to participate in this study. If you enroll in the study all treatment study procedures and office visits will be free. Also, participants will be compensated upon completion of the study. If you are interested or have any questions or concerns please feel free to contact us. We can be reached at 718-270-1364 or 718-270-2101 or e-mail us at reproendo@downstate.edu

I completely understand your pain.
2000 - 2 laps and a hemorrogic(sp) cyst removed. Diagnosised with Endo.
2002 - 1 lap to remove implants/scar tissue.
2003 - 2 laps to remove implants on bladder/scar tissue
2004 - 1 lap to remove implants/scar tissue. Tired of this. Thought hysterectomy would end the pain. Complete hysterectomy
2005 - Emergency surgery, implants/scar tissue squeezing colon.
2006 - Tune up again(scar tissue)
2007 - Scheduled for surgery in mid-November for another tune up.

My doctor told me that some people are under the impression that a hysterectomy is a cure-all when it fact its not. It all depends on bad the endo or the reason for the hysterectomy. It depends on whether or not you are on HRT, because if you had implants in your abdomen the HRT will cause the cells to continue to grow. It also depends on how your body heals itself. She also said that there is this new medicine out there for those of us that suffer continously with this. It is done by applying this medicine to the wall of the abdomen and surrounding tissues much like you would spread lotion and it makes the walls slippery so the implants and scar tissue can not attach themselves. She said the FDA just approved it late last year and she has seen remarkable results. I cant remember the name of it but when I see her on Tuesday, I will write it down and share it. I, like you, am tired. Right now I have a big mass in my left hip area which is prolly more scar tissue and adhesions. The one good thing about my doctor is she was a sufferer of Endo and fully understands everything with this disease and for that I am grateful. I hope you get to feeling better soon. I will keep you informed of what is happening and that new drug.

I completely understand your pain.
2000 - 2 laps and a hemorrogic(sp) cyst removed. Diagnosised with Endo.
2002 - 1 lap to remove implants/scar tissue.
2003 - 2 laps to remove implants on bladder/scar tissue
2004 - 1 lap to remove implants/scar tissue. Tired of this. Thought hysterectomy would end the pain. Complete hysterectomy
2005 - Emergency surgery, implants/scar tissue squeezing colon.
2006 - Tune up again(scar tissue)
2007 - Scheduled for surgery in mid-November for another tune up.

My doctor told me that some people are under the impression that a hysterectomy is a cure-all when it fact its not. It all depends on bad the endo or the reason for the hysterectomy. It depends on whether or not you are on HRT, because if you had implants in your abdomen the HRT will cause the cells to continue to grow. It also depends on how your body heals itself. She also said that there is this new medicine out there for those of us that suffer continously with this. It is done by applying this medicine to the wall of the abdomen and surrounding tissues much like you would spread lotion and it makes the walls slippery so the implants and scar tissue can not attach themselves. She said the FDA just approved it late last year and she has seen remarkable results. I cant remember the name of it but when I see her on Tuesday, I will write it down and share it. I, like you, am tired. Right now I have a big mass in my left hip area which is prolly more scar tissue and adhesions. The one good thing about my doctor is she was a sufferer of Endo and fully understands everything with this disease and for that I am grateful. I hope you get to feeling better soon. I will keep you informed of what is happening and that new drug.

Contact the Center for Endometriosis Care in Atlanta. You can look up website online; they specialize in the treatment of endometriosis. I had surgery there last month to remove stage IV endo and a damaged ovary & tube. They were wonderful.
You also might want to look into some homopathic & alternative medicine solutions to help you manage the pain.
I'd definitely start shopping for another doctor; although it seems like most ob/gyn's still insist that a hysterectomy is the only solution even when it's not.
According to an article that I read in Prevention magazine (it was also on CNN.com.), the hysterectomy is the number 1 surgery that is performed unnecessarily. Based on my research, the only time hysterectomy is the answer is to remove cancer.

I HAD A HYSTERRECTOMY 11YRS AGO AND I HAVE SUFFERED FROM ADHESIONS AND MY GYNEA HAS TOLD ME THAT ALLS I CAN DO IS TRY DIFFERENT PAIN KILLERS I REALLY DO FEEL FOR YOU

Oh my dear, am 33 and i also have severe endometriosis and full of adhesions and when am in pain i cant even move and even breathing hurts even worse, i also been told that a hystorectamy is not a good option because am still too young, but am in the same boat, they dont know what to do and i just have to live with it, crap isn't it, just hang in there that's all we can do, but i have had some emails from some kind of a resercher about endo and the last time she gave me a list of herbs i havn't tried but its worth having a go i think! take care