Is this where the Endo is hidden in the womb's muscle or nerves? As my Gynae did mention this to me. I haven't had a firm diagnosis that I have it in these areas but they were talking of doing a test to find out. Otherwise i can't really help you, but what you could do is tell others what you know about your diagnosis. As with Endo not a lot is known anyway so may be what you have got could be missed with other people. What are the symptoms of your rare Endo? sorry I couldn't be much help but like I said you could help others find what is wrong with them.

Kirsty

No, it's a complication from my csection 3 years ago. During the surgery some of the lining inside the uterus (endometrium) was deposited into my subcutaneous tissue (fat). Over the past 3 years it has grown & become extremely painful. It's like regular endo only it's right under my skin in my csection scar. You can actually feel it & when it swells up during/after my period it I can hardly even bend over. I guess "normal" endo is inside your body, beneath the muscle, attached to the bladder, ovaries, ect., where as mine is trapped between the skin & muscle, in the fat tissue. It's very hard to find info on it online. It's not very common I suppose.