Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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/ Endometriosis Support Group

Has anyone been diagnosed with Incisional Endo?

deleted_user
deleted_user
I am new to this forum & would like to say hello to everyone. I hope everyone had a great Turkey Day!! This is also my first post so here goes:

I was diagnosed with Incisional Endometriosis & am having surgery in 6 days. I was just wondering if anyone else has this and has had the surgery or maybe just have some experience with this that you could share. From what I understand, the type of endo I have is rare & it's hard to find much info online about it much less find anyone else that actually has it. It would be great to hear from you if you're out there!
deleted_user
deleted_user
Is this where the Endo is hidden in the womb's muscle or nerves? As my Gynae did mention this to me. I haven't had a firm diagnosis that I have it in these areas but they were talking of doing a test to find out. Otherwise i can't really help you, but what you could do is tell others what you know about your diagnosis. As with Endo not a lot is known anyway so may be what you have got could be missed with other people. What are the symptoms of your rare Endo? sorry I couldn't be much help but like I said you could help others find what is wrong with them.

Kirsty
deleted_user
deleted_user
No, it's a complication from my csection 3 years ago. During the surgery some of the lining inside the uterus (endometrium) was deposited into my subcutaneous tissue (fat). Over the past 3 years it has grown & become extremely painful. It's like regular endo only it's right under my skin in my csection scar. You can actually feel it & when it swells up during/after my period it I can hardly even bend over. I guess "normal" endo is inside your body, beneath the muscle, attached to the bladder, ovaries, ect., where as mine is trapped between the skin & muscle, in the fat tissue. It's very hard to find info on it online. It's not very common I suppose.
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