Hi all, I am new. I was diagnosed 9 years ago with endo through surgery; although, my symptoms date back to high school. Since then, they have tried all kinds of fun stuff on me, sometimes more than once. In March, I had another surgery, followed by more birth control trials. The difficult part is that I cannot take BC at all. I bleed the entire time I take it, no matter what kind or strength, as long as I am on it (once for an entire year!). I have done the Depot Lupron as well and now have the stupid IUD in. The doctor said that she didn't think that the IUD would work for someone like me because I grow very large cysts on top of having the endo. I have given you the really short version of my path. Now I am stuck with the IUD in me that is causing me to have super terrible cramps and pain from the cysts. Now the doctor is out of ideas...I can tell. I do not want kids and they still won't give me a hysterectomy because of my age and I haven't had any children. ??? I do not want children but this does not seem to have much impact. AND NOW the doctor has informed me that she will be filling only half of my pain medication and I now need to see a pain management specialist. I would like to know if anyone else has a doctor that has "given up" on them? Please respond if you have visited a pain management specialist for this and what I can expect? I just feel kinda like a lab rat being passed around the medical field and no one seems to agree or know more than the last one. I hurt and the only medication that gives me relief I do not have. This makes me feel like admitting defeat.
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