Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
I have been spending alot of time researching endometriosis. And I found something today, that I thought I would share with the rest of you. Maybe it's nothing, but since Doctor's still don't know a whole lot about endo, then it's basically left to us to find all we can on our own. Here is the web site that I got the information from:
http://www.orthoelmiron.com/orthoelmiron/conditions_endometriosis.html?host=www.orthoelmiron.com&gclid=CNq04c7wy48CFQenIwodpzcPzA
Here is what it said on the web site, I just copied and pasted it here for you to read.
Endometriosis.
Endometriosis occurs when tissue from the endometrium, or lining of the uterus, grows outside the uterus, where it is not supposed to grow. But treating the endometrial tissue or even removing the entire uterus does not always relieve a patients pain. So something else may be the source of the chronic pelvic pain experienced by women diagnosed with unresolved endometriosis. Interstitial cystitis (IC) should be considered.
Could IC be causing your symptoms?
Patients with unresolved, chronic or persistent endometriosis often report symptoms that are similar to the symptoms of IC:
Chronic pain, usually in the pelvic area or lower back.
Painful urination, especially during their periods.
Pain during or after sex.
Painful or heavy periods.
Painful bowel movements during menstruation.
Fatigue.
Unresolved endometriosis and IC share many characteristics. They are hard to diagnose, and they often occur together. In a study of 60 patients at a regional pelvic pain center, 80% of women had both endometriosis and IC at the same time, which is why treating only endometriosis often does not relieve the pain.
If you continue to have pain, even after trying different treatments for endometriosis prescribed by your doctor, you should ask him or her to investigate if your pain, and your need to urinate often, may be due to IC. To obtain an accurate diagnosis, you may need to request a referral to a specialist, such as a gynecologist or urologist.
Three more steps toward recovery.
There are specific things you can do to help your doctor reach an accurate diagnosis more quickly. Prepare for your doctor visit now and learn a simple 3-step process you can follow.
Remember all treatments for IC need time to alleviate your symptoms. So the sooner you start the diagnostic process, the sooner you may find relief.
** I hope this is helpful**
http://www.orthoelmiron.com/orthoelmiron/conditions_endometriosis.html?host=www.orthoelmiron.com&gclid=CNq04c7wy48CFQenIwodpzcPzA
Here is what it said on the web site, I just copied and pasted it here for you to read.
Endometriosis.
Endometriosis occurs when tissue from the endometrium, or lining of the uterus, grows outside the uterus, where it is not supposed to grow. But treating the endometrial tissue or even removing the entire uterus does not always relieve a patients pain. So something else may be the source of the chronic pelvic pain experienced by women diagnosed with unresolved endometriosis. Interstitial cystitis (IC) should be considered.
Could IC be causing your symptoms?
Patients with unresolved, chronic or persistent endometriosis often report symptoms that are similar to the symptoms of IC:
Chronic pain, usually in the pelvic area or lower back.
Painful urination, especially during their periods.
Pain during or after sex.
Painful or heavy periods.
Painful bowel movements during menstruation.
Fatigue.
Unresolved endometriosis and IC share many characteristics. They are hard to diagnose, and they often occur together. In a study of 60 patients at a regional pelvic pain center, 80% of women had both endometriosis and IC at the same time, which is why treating only endometriosis often does not relieve the pain.
If you continue to have pain, even after trying different treatments for endometriosis prescribed by your doctor, you should ask him or her to investigate if your pain, and your need to urinate often, may be due to IC. To obtain an accurate diagnosis, you may need to request a referral to a specialist, such as a gynecologist or urologist.
Three more steps toward recovery.
There are specific things you can do to help your doctor reach an accurate diagnosis more quickly. Prepare for your doctor visit now and learn a simple 3-step process you can follow.
Remember all treatments for IC need time to alleviate your symptoms. So the sooner you start the diagnostic process, the sooner you may find relief.
** I hope this is helpful**
deleted_user
Thanks for this it is useful but my Gynae and doctor already know my bladder problems and have never done anything about the bladder prob's. I have been put on long term anti-biotics as well as anti spasmodics but to no avail. But my doctor thinks I have Endo in my bladder which is causing all the problems anyway. I have my third lap in December and they will be looking into my bladder as well as my bowel so i can hopefully get a firm dignosis. It really takes a specialist in Endo to get any of this resolved.
deleted_user
That's an interesting bit of info. I will have to go do some more research. In just the last few months I have had some new symptoms with my endo that I haven't had before, like pain urinating during your cycle etc.. so this was helpful. I will look into it more. Thanks.
deleted_user
THanks for the info! This is very helpful. I'm going to look into it and see if IC is going on!
deleted_user
I was dx with IC during a lap in 2005. The urologist came in and did a cystoscopy and it showed red, pussy bumps(gross!). I followed up with the uro and she said that IC is a generic term used for irritation in the bladder and that mine is probably endo. I was told to eat diferently, no coffee or acidic foods like tomatoes and vinegar. It really did not help and I still feel like I have a UTI a lot. Now I am pregnant and I still feel like I have a UTI swo I fear that after a hysterectomy I will still have the bladder pain. I guess we will see since I am having a complete hysterectomy after I give birth to my triplets in Dec. Bladder pain is the worst.
deleted_user
Due to all my unbearable periods since puberty, I had always suspected I had endo. When I finally had a laparoscopy confirmation, my dr. also found what she called "probable" adenomyosis (a variation of endo where it has grown into the walls of your abdominal muscle). This also causes bladder & bowel problems--I always had "spontaneous bowel movements" (aka diarrhea) with my period when I was younger. Don't know if this affects anybody else? Another "mystery" disease to look up & research on the web but with alot less info available than endometriosis!!!
deleted_user
yes it was thank u
deleted_user
I have endo and ic. Just wanted to let everyone know about a great book I read a few months ago. Its called The Yeast Connection Handbook by William G.Crook,M.D. It talks about endo & ic & other problems. It's a great book to read. Hope this helps someone out there. =-}
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