I was exposed to the synthetic hormone DES in the womb - wondering if there are any others out there in a similar situation? I'm 44 years old and my mother was prescribed the medication while pregnant with me to prevent miscarriage, but years later they found that it caused reproductive birth defects in the females. I've known about it since I was 15 and I know that there is a much higher risk of cervical and vaginal cancer but last week I went to a new gyno about my periods getting really irregular and my cramps getting worse among other things. I had no idea that I have classic endo symptoms - I was so uninformed about the disease and when mentioning my problems to previous doctors, they just dismissed them. I am grateful I found a doctor who may have finally diagnosed me properly - plus, he is VERY familiar with DES daughters and the problems associated them. But he wants to do a partial hysterectomy - taking the uterus and cervix but leaving the ovaries (if they aren't "diseased"). I know NOTHING about endo and have been learning a lot online. I am afraid that if he does the partial hysterectomy, that I will still have a pain/cramps in my bowel/hip area where we believe the endo has spread. What's the point of the hysterectomy if there's still a chance that the symptoms will remain? Can he get rid of the cells on the bowel? And if he takes the ovaries, what are the risks of an early menopause? I wouldn't be able to take hormone replacement therapy because I was exposed to a synthetic hormone in utero, so now what? I am afraid that a partial hysterectomy won't relieve my symptoms and that a total hysterectomy will cause long term problems and could potentially shorten my life. I should have asked him what my other treatment options are I was so stunned by the thought of having endo that my mind kind of went blank. I am having an ultrasound next week. I'm not sure what, if anything that will reveal. Any advice anyone has for me would be greatly appreciated!!!
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