Endometriosis Support Group
Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.
This is part of a messege sent to a forum that I belong to: I am not the person who recieved this email. However, I think it is important to spread any information that may effect the women on this Endo site.....
"got an e-mail from a woman last night, asking for all the info I
have on Lupron, because her daughter recently passed away at 27 years
old, 22 days after being given a shot of Lupron.
They did an autopsy and said she "cant tie it to Lupron," and no
>attorney will even touch the case.
When they did the autopsy, they found that the 27 year old did not even
have endo and that is the reason her doctor gave her the shot.
Why don't these people have to pay for hurting us? Why can they just
keep prescribing this, not giving people the warnings and getting away
with it?
I have been on a writing-letter craze, trying to get the FDA to open
their eyes, written Dateline, Erin Brockovich...
I got a letter back from the FDA that said, well, patients are responsible for researching themselves what side effects drugs have." I
wrote back again and said, maybe to an extent, but doctors are LYING to us and the warning leaflet is not being given to patients and it is not accurate either! It does not say all the side effects may last indefinately, even when the drug is discontinued!"
AGAIN....I am not the woman who recieved the email; but due to the fact that I have been effected by Lupron...I only want to say how sorry I am that this woman died so young and wrongly. IT IS OUR DUITES TO RESEARCH THIS DRUG...even the FDA said it...please research research research ladies....the internet is at our finger-tips...and we need to dig deep to find any real answers. Please be careful with this drug ladies and drugs like it. I have so much information on it that it makes my head spin...directly because it can't prove anything to my doctors...and it won't fix me....YET. I still have hope.....
PLEASE HEAR ME, AND PROTECT YOURSELVES....
"got an e-mail from a woman last night, asking for all the info I
have on Lupron, because her daughter recently passed away at 27 years
old, 22 days after being given a shot of Lupron.
They did an autopsy and said she "cant tie it to Lupron," and no
>attorney will even touch the case.
When they did the autopsy, they found that the 27 year old did not even
have endo and that is the reason her doctor gave her the shot.
Why don't these people have to pay for hurting us? Why can they just
keep prescribing this, not giving people the warnings and getting away
with it?
I have been on a writing-letter craze, trying to get the FDA to open
their eyes, written Dateline, Erin Brockovich...
I got a letter back from the FDA that said, well, patients are responsible for researching themselves what side effects drugs have." I
wrote back again and said, maybe to an extent, but doctors are LYING to us and the warning leaflet is not being given to patients and it is not accurate either! It does not say all the side effects may last indefinately, even when the drug is discontinued!"
AGAIN....I am not the woman who recieved the email; but due to the fact that I have been effected by Lupron...I only want to say how sorry I am that this woman died so young and wrongly. IT IS OUR DUITES TO RESEARCH THIS DRUG...even the FDA said it...please research research research ladies....the internet is at our finger-tips...and we need to dig deep to find any real answers. Please be careful with this drug ladies and drugs like it. I have so much information on it that it makes my head spin...directly because it can't prove anything to my doctors...and it won't fix me....YET. I still have hope.....
PLEASE HEAR ME, AND PROTECT YOURSELVES....
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
My purpose is to make this information more available than it was to me. I am fighting to be heard about my reactions, and will continue to fight to find answers.
I do not negate that Lupron may help some women. This is not by any means my purpose. I only want to share the info that I am aware of. So that others may make a more educated decision by knowing ALL of the possabilities.