Thank goodness for this forum!! I have been reading it for hours, so good to know I am not alone! I am 33 years old and was just diagnosed with Endo. I have been in terrible pain for three months now. It began with a trip to the er, they found a 5.9 cm cyst on my left ovary. Had a lap on 5/4, they drained the cyst and took a small biopsy which turned out "normal, hemorrhagic corpus luteal cyst," hence the beginning of my ordeal. Three days after the lap I developed terrible pains, similar to what I was experiencing before the surgery but worse. I got the runaround from my ob/gyn for a good week or so, finally after becoming he least liked patient, and two trips to the er, they discovered I had yet another cyst 4.8 cm. They claimed it was a new cyst because they had removed a cyst wall from the first one and it couldnt had filled up again that quickly. Fast forward two weeks, three er visits, numerous dr visits, and an endless amount of narcotic painkillers that didnt even touch the pain. I finally went to the er at a different hospital, the cyst was now 7.5 cm and pulling my ovary under my uterus(no wonder I was in pain!). They admitted me and performed emergency surgery on 5/27(2nd lap) where they completely removed the cyst. A week and a half after my 2nd surgery I was in pain again just like the first time. I was told by my new ob/gyn that the pain had nothing to do with my surgery (I truly believe she thought I was trying to scam painkillers). She suggested I go to a pain specialist because she wasnt comfortable giving me any more meds. Turns out I had yet another cyst on the same ovary 4.6 cm!!! Six weeks after my 2nd lap and me once again becoming their least favorite patient I finally got the pathology back and what do you know it turned out to be an endometrioma ( this explains why they kept coming back with such force, I have endo. So I had a reason for being in pain!! I had starting to second guess myself thinking maybe it was in my head. I finally saw an endo specialist in NYC, Dr. Kanayama on 7/21. Not only do I have two more smaller endometriomas on my left ovary but my uterus is being pulled to the left (he believes I have endo on my utero-sacral ligament which has adhered to my uterus). This explains the terrible pain I have been experiencing (pelvic pain, horrible lower back pain, butt pain, leg, groin pain). I am scheduled for my third lap on 8/4, he is going to excise the endo. At this point three months into it, I am either in bed or on the couch constantly on a heating pad. I have been to a pain specialist twice and he is giving me a scary amount of pain medication that still is not entirely working (opana 15mg extended release and 10mg percocet that was just upgraded to 30mg oxycodone) I am so terribly frightened taking so much medication I dont want to be addicted on top of everything) but for now this is all I can do to survive until my third surgery. Sorry for such a long post believe it or not this is the short version!! It just completely baffles me how I have been treated by these ob/gyns, total disregard for my pain, and they never even had the correct diagnosis! Hopefully this endo specialist will be able to help me as my husband and I have been trying to conceive for a year and a half now. Can anyone give me some feedback on the excision surgery?? From what I have read I am at least on the right track. I'm curious how painful this surgery will be and what I can expect for a recovery time. My endo specialist is telling me I can start trying to get pregnant a month after the lap. Any feedback would be greatly appreciated. Thank you!!!
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